artur737 Oswiadczenie dla Wladz Stanowych Ohio 26.10.07, 20:32 Karen Metzger oraz Leslie Pearce-Keatin zdecydowali sie zainteresowac wladze stanowe ogromnym problemem niewiedzy lekarzy w zakresie boreliozy. Wymienieni wyzej chorzy na borelioze oraz ich dzieci nie mogli w Ohio uzyskac zadnej pomocy i musieli podrozowac poza stan dla uzyskania diagnozy i leczenia. Celem oswiadczenia ma byc uzyskanie poparcia wladz dla uswiadomienia lekarzom, ze problem boreliozy w Ohio jest realny i musi byc zaadresowany. www.the-daily-record.com/news/article/2758552 Legislators hear lyme disease testimony By MARC KOVAC Dix Capital Bureau COLUMBUS Odpowiedz Link
artur737 Lyme Disease Spreading at an Alarming Rate 02.11.07, 15:41 Potential for Lyme Disease Spreading at an Alarming Rate International researchers say spread of parasites could increase incidence of Lyme and other tick-borne diseases SHAWNEE, Kan., Nov. 1 /PRNewswire/ Odpowiedz Link
artur737 Re: Lyme Disease Spreading at an Alarming Rate 02.11.07, 15:42 (1) Centers for Disease Control, MMWR Weekly www.cdc.gov/mmwr/preview/mmwrhtml/mm5623a1.htm?s_cid=mm5623a1_e, retrieved June 19, 2007. (2) Directors of Health Promotion and Education www.dhpe.org/infect/LymPe.html, retrieved April 26, 2007. (3) Measures to prevent bites from mosquitoes, ticks, fleas, and other insects and arthropods, Centers for Disease Control and Prevention Travel Guidelines, October 26, 2006 www.cdc.gov/ncidod/diseases/insects/special_topics.htm. (C) 2007 Bayer HealthCare LLC, Animal Health Division, Shawnee Mission, Kansas, 66201 Bayer, the Bayer Cross, Advantage and K9 Advantix are trademarks of Bayer. Odpowiedz Link
artur737 Masquerade fundraiser to help fight Lyme disease 03.11.07, 15:51 Masquerade fundraiser to help fight Lyme disease Posted by the Asbury Park Press on 11/1/07 BY TRISTAN J. SCHWEIGER tinyurl.com/2dqyjc REGION — Dr. John Drulle knew first-hand how difficult it can be recognize and treat Lyme disease. Drulle, who opened a Jackson practice with his wife, Dr. Emilia Eiras, in the late 1980s, focused much of his professional life on raising awareness about the tick-born bacterial infection and helping patients who suffered from it. He also suffered from Lyme disease and ultimately died of complications from it in 2003 at 59. But Eiras and others are continuing the fight against the disease. Eiras, a 54-year-old Jackson resident, is president of the John Drulle M.D. Memorial Lyme Fund Inc., a nonprofit named in honor of her late husband. From 1 to 6 p.m. on Sunday, at Jenkinson's Pavilion in Point Pleasant Beach, the organization will hold its second annual Great Imitator Masquerade fundraiser. "Lyme disease is the great imitator. It imitates all illnesses," Eiras said. Lyme disease can be treated through antibiotics. But it can be very difficult to diagnose because its symptoms are so similar to other ailments, according to Eiras. Often, but not always, she said, a bull's-eye-shaped rash appears around the area of an infected tick bite. The patient may have some flu-like symptoms a couple of weeks later, but even this is not definite. It's not until months — or even years — after the initial infection that the more serious symptoms start appearing, Eiras said. These can include severe joint pain, heart problems and neurological effects. "They keep going to different doctors. They've gone to rheumatologists. Their joints are hurting. They start having chest pains — so then they go to a cardiologist," Eiras said. The key in combatting Lyme disease is to diagnose it long before such advanced symptoms appear, according to fund members. Lloyd Walling, an Englishtown resident who is a vice president and member of the fund's board of directors, said that despite the growing problem of Lyme disease, many people still don't recognize its danger. Walling's wife, Gail, also died of complications from the disease in the 1990s. He said she had the disease for several years before it was diagnosed. "You do have people walking around out there who aren't aware that this is a very troubling situation," said Walling, 62. In addition to proper and early diagnosis, people can take several steps to prevent Lyme disease, Eiras said. The Centers for Disease Control and Prevention recommends avoiding wooded and bushy areas with high grass or leaf litter, using insect repellents with 20 to 30 percent DEET or permetherin content, and wearing long pants, long sleeves and long socks to keep ticks off the skin. Odpowiedz Link
artur737 Does Lyme Disease causes Autysm? 07.11.07, 13:43 Evidence Mounts Implicating Lyme Disease in the Autism Epidemic More proof that infections play a role in this childhood epidemic. The association between tick-borne infections, Lyme Borreliosis and autism spectrum disorders (PRWEB) November 7, 2007 Odpowiedz Link
artur737 Re: Does Lyme Disease causes Autysm? 07.11.07, 13:48 tinyurl.com/2n2u6q Tam jest odnosny abstrakt. Odpowiedz Link
artur737 Sporo danych przeciwko testowi ELISA 09.11.07, 20:39 Rapid Responses to: FEATURE: Alison Tonks Lyme wars BMJ 2007; 335: 910-912 [Full text] Rapid Responses published: Lyme Wars: Tackling the Testing. 5 November 2007 Raphael B. Stricker, MD 450 Sutter Street, Suite 1504, San Francisco, CA 94108, Lorraine Johnson Send response to journal: Re: Lyme Wars: Tackling the Testing. To the Editor: The generally balanced report by Alison Tonks about the "Lyme Wars" (3 November) fails to provide a balanced view of one issue: while the Centers for Disease Control and Prevention (CDC) warn practitioners about "various unvalidated tests", they fail to warn us about the Food and Drug Administration (FDA)-approved commercial tests for Lyme disease. The two-tier testing system endorsed by the CDC has a high specificity (99%), meaning that this approach yields few false- positives. But the tests have a uniformly miserable sensitivity (56%), meaning that they miss 88 out of every 200 patients with Lyme disease (Table). By comparison, AIDS testing has a sensitivity of 99.5%, meaning that these tests miss only one out of every 200 AIDS cases. In simple terms, the chance of a patient with Lyme disease being diagnosed using the FDA-approved and CDC-sanctioned commercial tests is about the same as a coin toss, and the poor test performance assures that many patients with Lyme disease will go undiagnosed. Until we scrap the worthless commercial tests for Lyme disease and find a better way to make the diagnosis of this protean illness, the "Lyme Wars" will continue unabated. Raphael B. Stricker, MD Past President, International Lyme & Associated Diseases Society, San Francisco, CA 94108 Lorraine Johnson, JD, MBA Executive Director, California Lyme Disease Association, Los Angeles, CA 90068 Sensitivity/Specificity of Commercial Two-Tier Testing for Lyme Disease Study/Year Sensitivity Specificity Schmitz et al, 1993 66% 100% Engstrom et al, 1995 55% 96% Ledue et al, 1996 50% 100% Trevejo et al, 1999 29% 100% Nowakowski et al, 2001 66% 99% Bacon et al, 2003 68% 99% MEAN TOTAL 56% 99% 1. Schmitz et al. Eur J Clin Microbiol Infect Dis. 1993;12:419-24. 2. Engstrom et al. J Clin Microbiol. 1995;33:419-27. 3. Ledue et al. J Clin Microbiol. 1996;34:2343-50. 4. Trevejo et al. J Infect Dis. 1999;179:931-8. 5. Nowakowski et al. Clin Infect Dis. 2001;33:2023-7. 6. Bacon et al. J Infect Dis. 2003;187:1187-99. Competing interests: RBS serves on the advisory panel for QMedRx Inc. Lyme Disease is not a simple infection 7 November 2007 Odpowiedz Link
artur737 Re: "Sezon na Kleszcza" cz druga 17.11.07, 02:36 W materialach dla lekarzy jest odpowiedz Dr Jemseka na agresywny artykul IDSY w NAJM. Poniezej zamieszczam inny list w protescie, napisany przez psychiatre, ktory widzi duzo pacjentow z borelioza bo tam wysylaja mu ich zakaznicy. List nawoluje do podjecia pokojowych dyskusji, ale autor oprocz tego wyraznie w nim pisze, ze pacjenci majacy zaburzenia psychiczne spowodowane borelioza nie odpowiadaja na typowe leczenie psychiatryczne, natomiast prawie zawsze jest widoczna poprawa po wielomiesiecznym leczeniu abx. Czesto te poprawe mozna uwidocznic rezonansem i innymi badaniami mozgu. As a psychiatrist in a lyme endemic area, I have evaluated numerous patients with complaints related to lyme disease, many of whom have had symptoms that persisted for months to years, and many of whom report the onset temporally related to a tick bite they received which was either untreated or treated with a short term course of antibiotic medicine. As a psychiatrist, and not expert in infectious disease, I do not diagnose or prescribe antibiotic treatment for lyme or related diseases, but rather refer to other physicians. I have responded to the complaints of these patients by providing symptomatic relief for the neuropsychiatric manifestations of their illness and by referring them in some cases to physicians who prescribed long term antibiotic therapy, dismissed in the review article as "self proclaimed lyme literate physicians." Since I have been aware of the great lyme controversy, I have followed with great interest the medical, financial and political interests surrounding lyme treatment and read with great interest the current review which provides an excellent summary of the position of physicians on one side of the current debate. As a psychiatrist, I could not avoid notice of the defensive posture taken by the authors, and for good reason. Any physician who now opposes long term antibiotic therapy for lyme or related illness will, as stated, fall under attack by large numbers of patients, support groups and internet sites who believe that they have a tick bite related illness which requires treatment these physicians wish to deny them. While I appreciate the review writer's dilemma, medical treatment must remain grounded in evidence. Part of that evidence, as relates to lyme disease, is that there is not yet a definitive diagnostic test, and there are no definitive treatments known to ease the suffering of those patients whose complaints, with varying degrees of merit, involve persistent symptoms compatible with tick borne illness. With regard to diagnosis, the experience reported by many patients who consult with mainstream doctors is that they are told, as detailed in the review, "You do not have lyme disease." The personal, or psychiatric, effect this has is to make patients feel hopeless, since the implication is that either they are faking symptoms, are consigned to live forever impaired or are mentally disturbed. It is the latter which brings them into my purview. I am not a researcher and what I report may be dismissed as "anecdotal," but anecdotes and offhand observations have led to some important medical discoveries. I have observed that many patients with a history of limited early treatment for tick bites using ten days to three weeks of antibiotic treatment do not respond to conventional psychiatric treatments for apparently conventional psychiatric illnesses with the same rigor or consistency as patients without such history. Odpowiedz Link
artur737 Re: "Sezon na Kleszcza" cz druga 17.11.07, 02:36 While I cannot explain this, I am certain of my observations. One is that some of my patients with apparent psychiatric illnesses including depression, fatigue, sleep disturbance, obsessive compulsive disorder and psychosis who had a history of tick bite treatment, and who failed to improve sufficiently with conventional treatment, responded well after receiving treatment with antibiotics ranging up to eight months, in some cases with cessation of all psychiatric symptoms. In several, symptomatic improvement paralleled SPECT scan results showing reversal of diffuse cerebral hypoperfusion in conjunction with long term antibiotic treatment. Regarding terminology, it is of little interest to me whether the symptom complex described is referred to as "chronic," "post lyme," "fibromyalgia," etc. My interest is in helping those who come in sick or disabled. Whether the persistent symptoms are theoretically related to syphilus or any other infectious disease is a matter for the scientists. The energy and resources spent fighting over these matters is not well spent. I am disturbed to see the NEJM weigh in so heavily on one side of this controversy and hope that the current review will represent the beginning of a scientific dialog about this increasingly prominent illness. As an interested observer of the lyme controversy, I have seen the abundance of "scientific" studies supporting both sides of the lyme controversy, and, as I read the review, began formulating what I believe will be some of the responses from the "lyme literate" community, who now must defend their treatment practices. While honest and dedicated physicians reside in both camps, I am deeply disturbed by the tenor of the debate and wish to issue a plea to all parties, consisting of two suggestions: First, stop attacking the integrity, experience and motives of fellow physicians and second, until evidence becomes incontrovertible, better tests and treatments developed and a consensus established, permit fellow physicians to treat this illness in accord with their best knowledge and experience without recrimination. RB, MD Odpowiedz Link
artur737 Brytyjski rugbista Gregory umiera na borelioze 20.11.07, 16:12 .. i to pomimo leczenia w USA u znanych LLMD To pisano o nim rok temu (jeszcze calkiem niedawno byl czynnym sportowcem) Stars turn out for Gregory Mike Gregory Gregory is battling Lyme Disease Borreliosis More than 5,000 fans turned up at Wigan St Pat's amateur rugby league club for a testimonial match to raise money for rugby league legend Mike Gregory. The former Warrington and Great Britain captain is battling a muscle wasting disease which has left him confined to a wheelchair. The match was contested by a team of Wigan legends versus a select team from St Pat's, one of Gregory's former clubs. Turning out for the Wigan team were ex-Great Britain stars Andy Farrell, Andy Gregory and Jonathan Davies. Henry Paul, Brett Dallas and Bobbie Goulding also played to show their support for Gregory. A game of touch, the brainwave of former Wigan great Joe Lydon, ended in a spirited draw. The event raised over £25,000 for Gregory as he battles Lyme Disease Borreliosis, a tick-borne disease that blocks signals from the brain getting to muscles. Odpowiedz Link
artur737 Re: Brytyjski rugbista Gregory umiera na borelioz 20.11.07, 16:15 The Times November 20, 2007 Game mourns death of great after Mike Gregory loses his battle Mike Gregory, the former Great Britain captain and Wigan Warriors coach, died yesterday after a prolonged battle with a neurological condition that had rendered him wheelchair-bound for the past year. He was 43 and leaves a wife and two young sons. “Anyone who played with him, against him, or watched him play would have respected Mike for his courage,” Joe Lydon, his former Britain teammate and best man at his wedding, said. “He brought that same courage to his fight against an appalling illness.” Gregory’s wife, Erica, a biochemist, traced his condition – progressive muscular atrophy, a form of motor neuron disease – to a tic bite suffered while coaching the Britain academy squad in Australia in 2003 and the subsequent contraction of an infection known as borrelia, the causative agent of Lyme Disease. His illness forced him to give up the Wigan job after he had steered them to the 2004 Challenge Cup final and Grand Final the previous season. His death brought an outpouring of grief last night from a sport in which he excelled as a fearsomely competitive player and a highly motivated coach. He was spoken of as a potential future coach of his country, whom he led to series victories over New Zealand in 1989 and 1990 during 20 international appearances, nine as captain. Shaun Edwards, who went to school with Gregory in Wigan and played alongside him for Britain, said: “On the pitch, he was a warrior. Off it, he was full of life, full of fun. As a coach, he was a guy who cared deeply for his players. It was heartbreaking to see him suffer recently. There have been a lot of [fundraising] events, which showed how much people thought of Mike.” Although born in Wigan, Gregory spent virtually all of his playing career at Warrington, where a book of condolences has been opened, as the backbone of the side at loose forward for 12 seasons. He captained the team at Wembley in the 1990 Challenge Cup final defeat by Wigan, who had tried in vain to sign him in 1988. If loyalty was one of his strengths, so was the stubbornness that came to define his latter years. He was assistant coach to Wales in the 1995 World Cup while pursuing a fruitless attempt to defy a knee injury that eventually ended his career after 18 appearances for Salford at the age of 31. He began the Super League era in 1996 as assistant coach to Shaun McRae at St Helens. He then coached Swinton before moving to Wigan, initially as academy coach and then as assistant to Stuart Raper, whom he succeeded in July 2003 to take over what he referred to as his “dream job”. Gregory was aware of the seriousness of his condition only when he collapsed during the week of the 2003 Grand Final. His last game in charge of Wigan was the Challenge Cup final in Cardiff the next May, after which he stood down to have treatment in the United States, which failed to halt the remorselessness of his debilitating condition. Odpowiedz Link
artur737 Panel: Lyme Disease Doctor Should Be Reprimanded 30.11.07, 06:10 tinyurl.com/3desnk Oskarzyciele wyznaczyli dzien 18 grudnia jako termin wydania wyroku. Propozycja jest taka aby ukarac Dr Jonesa kara $10000 oraz postawic warunki na jakich moze on dalej praktykowac medycyne. Przewiduje sie, ze bedzie on musial kwartalnie przedstawiac historie choroby wszystkich swoich biezacych pacjentow innemu lekarzowi i bedzie musial zaplacic za jego czas. Jezeli wynikna dalsze problemy to utraci on licencje. Artykul konczy sie opisem radosci lokalnego szefa reumatologii, ze wydany wyrok wysle klarowna wiadomosc dla innych lekarzy ILADS. Wyrok moze jeszcze ulec zmianie. By WILLIAM HATHAWAY | Courant Staff Writer 7:41 PM EST, November 29, 2007 In a decision with national implications for how suspected cases of Lyme Disease are treated, a state physician review panel is recommending that controversial pediatrician Charles Ray Jones be reprimanded and put on two years' probation for his diagnosis and treatment of two Nevada children. If the panel's recommendation is upheld next month, the New Haven area pediatrician Odpowiedz Link
artur737 Pomnik Jones'owi? 13.12.07, 21:15 Nowy artykul Pameli Weintraub tym razem bedacy rodzajem medycznej biografii Dr Jones’a. „Choc wielu tego jeszcze nie zauwaza, wiatr zmiany juz zaczal wiac” mowi m.in Dr Jones. Artykul opisuje, jak to od roku 2001 coraz wiecej lekarzy oficjalnie nalezacych do bloku IDSA, niekiedy piastujacych wysokie pozycje w medycznej hierarchii, ‘po kryjomu’ wysyla do Dr Jonesa swoich pacjentow zarazonych chorobami odkleszczowymi. Z roku na rok ilosc lekarzy po kryjomu sprzyjajacych ILADS dramatycznie narasta. A FEELING FOR THE ORGANISM One of the great humanitarian physicians, Charles Ray Jones is a medical maverick who bucks the establishment to treat tick-borne disease in the shadows of Yale. By Pamela Weintraub On crisp fall mornings and warm spring evenings, tourists to New Haven crowd the intersection of Broadway and Park. There, by the century-old gothic Christ Church, they steep in a brew of academic cool and kitsch. Students wander the streets clutching cups of Starbucks coffee, stopping to chat on benches or browse for books, designer jewelry and clothes. The Campus Clothing Company sells Yale University tee-shirts, caps, and mugs to gloating parents while students themselves don wardrobes from the Urban Outfitters down the street. It is only in downtown New Haven that a generic Barnes and Noble could have the chutzpah to call itself "The Yale Bookstore," or that casual food joints push the envelope with names like the Educated Burgher and the Ivy Noodle. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:16 Walk a few blocks East, and you'll find the source of all the haute and hype: Yale itself, home to the bright hopes and dreams of the well-heeled or simply brilliant, one of the most beautiful and august universities in the world. Ace your high school years with a 4.0 grade point average and 1600 SATs, and you might get to New Haven, too. But there is another, less illustrious route to New Haven, one requiring no academic credential save from the school of hard knocks. Just follow Park Street back past Christ Church, alongside the filling stations and Laundromats, the dilapidated deli storefronts and the children hanging on stoops. There, in the shadows of the Yale-New Haven Medical Center, in a seen-better-days building more notable for its Seventies-style blandness than ivy along the wall, is the first floor office of Charles Ray Jones. Today, at 73, Jones has, by default, become the sole U.S. pediatrician specializing in the long-term antibiotic treatment of the disease called "chronic Lyme." Often that term is a misnomer, Jones states. The chronic Lyme disease spectrum includes not just Borrelia burgdorferi, the bacterial infection known to cause Lyme disease, but a host of other tick-borne germs. At the top of Jones' list for these co-infections are human granulocytic ehrlichiosis, a rickettsial illness, bartonella, a bacterial disease known to gravitate to the brain and central nervous system, and babesiosis, caused by malaria-like protozoa that live in the blood. "The children and adolescents who get sickest, and who are hardest to treat," says Jones, "usually have an immune genetic marker associated with arthritis and more severe disease, or one of the co-infections along with Lyme disease." As far as Jones is concerned, moreover, children and teenagers treated appropriately usually kick the disease altogether -no matter how sick they may be when they walk through his door. "When it comes to children, at least," says Jones, "the word chronic usually does not turn out to be correct. Because we find that children, when diagnosed with the correct infections and treated with the appropriate medication, do get well." Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:18 It is the hopeful attitude and the accolades of grateful parents that keep Jones out of retirement -10 hours a day, seven days a week. Those first visiting the pediatrician may be surprised by the low-key office, hunkered, incongruously, at the end of a long, narrow, dimly lighted hall. The windowless waiting room is Norman Rockwell-friendly, boasting a selection of gentle watercolors and a Little Tikes Country Kitchen as well as countless books. His suite --including a few exam rooms and an alcove for blood work Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:19 It was in March of 2000 that Elizabeth Stone (not her real name) of northern Westchester county, New York, finally left her job to hunt, full time, for treatment for her 16-year-old son's "mystery" disease. Resident of a community at the epicenter of Lyme disease reports, with a house abutting a rare spruce forest filled with deer, Stone had first observed a strange, mottled rash on her son's torso in October of 1998. She called her pediatrician, a member of the largest and most respected medical group in her part of the county, asking whether she should come in. "No, don't bother," she was told. In the months that followed the boy proceeded to develop a host of disturbing symptoms: first a severe flu-like illness, then aches in his knees and elbows, finally, an unremitting migraine and marked nausea that never went away. Though Stone requested the doctor perform a Lyme disease test, he insisted the symptoms, in aggregate, were too broad and vague to suggest something like Lyme. As Stone traveled from specialist to specialist, including rheumatologists and infectious disease experts at the major teaching hospitals of Manhattan, she was given a variety of diagnoses questionable diagnoses from depression and stress to Parvo virus to unending, unrelenting "flu." Stone was fortunate in that her son's psychiatrist, a renowned expert in his own right, did not buy the 'psychiatric' diagnosis favored by the pediatrician or the neurologist brought on board. Responding to the psychiatrist's demand for more lab work, the primary care pediatrician, finally, reluctantly, drew 14 vials of blood. "We are testing for every disorder possible, just to make you feel better, even though there's nothing wrong," he told Stone at the time. But when a Western Blot test revealed 8 positive antibody bands for Lyme disease Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:20 The boy had been infected for a year or two, the doctor said, and prescribed four weeks of intravenous Rocephin to treat what he said was now a neurological disease. But when, at the end of the month, the teenager was sicker than ever, that doctor pulled back, too. There was nothing more he could do for the boy, he said -if the treatment hadn't worked, if the boy was still sick, whatever it was, it wasn't Lyme. He now tended to the psychiatric explanation, too. But what psychic switch had prevented this former basketball impresario and straight A student from standing or even sitting up in bed; from focusing enough to read a paragraph, let alone a page? What caused him to writhe in pain whenever anyone jostled him, to demand near-darkness to open his eyes, or to appear so contorted he might have been struck by a speeding Mack truck? These were the issues Stone was grappling with when the leader of a local support group steered her son to Jones. "Dr. Jones tested my son not just for Lyme, but for other tick-borne infections, including ehrlichia and babesia," she says. "When the results came back, Jones called to tell her the boy was positive for all three. Instead of using more aggressive intravenous treatments, as the mainstream had done, Jones used low-dose combinations of targeted medications: doxycycline to treat the Lyme and ehrlichia, and Mepron for the babesia. "Within two weeks my boy had gotten off the couch and was throwing a basketball in our family room," says Stone. A year later, he was well. "Had we listened to our pediatrician and the local Lyme disease expert," she says, "we might have stuffed him full of psychoactive medications unable to address the disease. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:22 It would have been tantamount to locking him up and throwing away the key." Instead, her son is once more a straight A honors student on the high school basketball team, with hopes of attending college in the Ivy League. More harrowing is the story told by Kay Lyon, a mother from Wenham, MA, who describes the decline of her daughter until, in the summer of 1998, she was locked in a pediatric psychiatric unit for three-and-a-half weeks. She had just turned nine. "She was paranoid, delusional, psychotic, suicidal, homicidal, and having visual hallucinations while partially blind," Lyon explains. "She suffered severe confusion, and pain in large and small joints. Because she could not attend public school she was placed in a 'behavioral program,' where she was physically restrained and put in solitary confinement almost daily for three months. There she cried, fought with her very real ogres, screamed, beat on the mat which was used to contain her, and finally would curl up in a fetal ball on the cold floor in the corner and sob. My husband found her in this 'room' one day and removed her from the 'school' immediately. She then spent three months at home with no schooling available for her at all." Saddled with numerous diagnoses, including bipolar disorder, attention deficit disorder, schizophrenia, possible schizophrenia, anxiety disorder, and tentative mitochondrial disease, the child was kept in check through psychoactive drugs like Lithium, Risperdal, Tegretol,Topamax, and Klonapin, which caused the gain of massive amounts of weight and kept her brain in a fog. Lyon was frantic. The child's IQ had dropped 45 points in six months, and a scan with magnetic resonance imaging (MRI) revealed multiple lesions throughout the brain, predominately in the frontal lobes. "Our child was a patient of 16 doctors," says Lyon, and "none knew what was wrong." Desperately searching the Internet for any clue to help, Lyon worked backward from the list of symptoms, and one condition stood out as encompassing all of them: Lyme disease. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:23 "Despite this discovery, " she says, "it took four months until I could find a doctor willing to diagnose and treat her for this disease. Most refused to even run a Lyme disease test. Then, Lyon found Jones." The doctor tested the child, finding not just Lyme disease, but also the co-infections babesia and ehrlichia. A little more than two years later, Three years later, treated with long-term oral antibiotics, the child has made a near-miraculous recovery. She is now in a normal sixth grader and, according to her mother, "she even has friends." "Dr. Jones is an angel, a living saint," Lyon says to anyone who will listen. "We owe him our lives." Renegade Medicine These difficult cases and the long-term antibiotic treatments Jones employs to deal with them have made him a maverick, reviled by establishment physicians who hold that Lyme disease is simple, marked by a circumscribed group of symptoms and treatable with four weeks of antibiotic therapy, eight at the outside most. "I know what they say about me behind my back," Jones states. "I am highly criticized, and constantly reported to licensing boards. People call me a renegade, a charlatan, a Lyme guru. They say I have a way of hypnotizing parents, that I am senile, or pre-Alzheimer's, not really a pediatrician at all." Yet Jones' simple lifestyle hardly smacks of the high-roller accouterments one associates with gurus. His two "vacations" this year-included trips to Guatemala to help his daughter adopt a toddler, Julian. To accommodate his arthritis and other disabilities, and to keep costs down, Jones has, since the death of his wife seven years ago, lived in an apartment above his office, in the same nondescript building he spends his days. "When he goes upstairs he opens a can of tuna or even Spam, and that's his dinner," says one close colleague who will not be named. Despite critics' contention that Jones diagnoses everything as Lyme disease, far-flung interviews with patients reveal the opposite to be true. One mother, for instance, arrived at Jones office after another doctor ascribed her son's severe gastrointestinal distress to Lyme disease. "Jones was skeptical," she says, "and insisted we find our own pediatric gastroenterologist without any particular knowledge of Lyme disease." Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:24 The doctor the family consulted, an expert at Mt. Sinai Medical Center in New York City, treated the child with weeks of laxatives, resolving the problem and concurring with Dr. Jones -the cause of the distress was not, in fact, Lyme disease. Another parent arrived when her 13 year-old seemed to have a relapse of his Lyme disease symptoms. Local pediatricians tested him and, finding the serology negative, refused to treat the child and sent him on his way. The mother expected Jones to ignore those test results and prescribe antibiotics nonetheless. That was not the case. Jones sent out for more extensive tests, including DNA analysis by polymerase chain reaction (PCR.) This time the child did not have Lyme disease but, rather, bartonella, one of the co-infections. Based on the latest peer-reviewed literature showing the antibiotic, zithromax, to be of use, Jones prescribed a short, low-dose course of that medication. In two weeks the boy was well. While costs for visits to Jones seem high, it's hard to believe the accusation that he is driven by greed. In a world of cookie cutter medicine defined by insurance company formularies and rigid standards of care, Jones not only spends hours with individual patients, he also treats many at discount, and some for free. In a sense, says Jones, the fees of those who can afford it subsidize the treatment for those who cannot. "How can I send them away," the doctor says, "when I understand the consequences to a child of that act?" Medical Ministry If Charles Ray Jones seems the quintessential humanist to parents, it is because he has been training for years. A first year student at Boston University's Divinity School in 1954, Jones was drawn to the institution's commitment to activism and openness. Along with Martin Luther King, Jr., his classmate and friend, he attended weekly meetings with Jewish students from Hillel and learned the value of a world community and civil rights. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:25 But a twist of fate would cause Jones to seek his ministry in medicine, not the cloth. "The divinity school was very much oriented toward social action," Jones explains. "One afternoon a week we went around to see people who had requested a ministerial visit. One day it fell to me to visit a woman of perhaps 80, a person very much alone not by desire but by default. I found a superbright individual in a body withered by rheumatoid arthritis, reflecting on the past. She came up to me, grabbed my hand, and said, 'help me in a real way.' But as a divinity student, I couldn't provide the help she truly needed -medical help. That's when I decided to have a different kind of ministry, a medical ministry. I felt that was the way I could contribute best." Later drafted into the Army, Jones managed both his passions with aplomb. He secretly left base to march for civil rights with his friend, Martin, even at risk of court martial. And he spent his evenings at Georgia State and Emory University taking courses in pre-med. By the time Jones was discharged from the service he'd married his college sweetheart, Margery, and had a letter of admittance to New York Medical College in New York City. It was 1958, and he was 29. A natural, Jones was not only president of his medical school class, with a coveted position researching collagen diseases in the school's biochemistry lab, but also recipient of an Arthritis Foundation scholarship and prestigious awards from Merck and Hoffman LaRoche. Upon graduation he became resident, and eventually, chief resident, at St. Luke's Hospital in Manhattan. With an interest in pediatrics as well as research, it made sense that Jones would be attracted to the hot field of the day -oncology Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:26 The problem, Jones found, was an entrenched system of classification identifying Langerhans cell granulomatosis as the first stage of an increasingly dangerous disease spectrum, culminating in a deadly proliferation of the body's immune cells. Working with colleague and fellow-physician Philip Lieberman, the longtime chief of surgical pathology at Memorial, only recently retired, Jones found that Langerhans cell granulomatosis was not malignant, not especially dangerous, and apparently unrelated to the disease spectrum with which it had been linked. Instead, precipitated by toxins or other environmental insults, Langerhans cell granulomatosis was an immune response that could be controlled with low-dose medication, including .methotrexate and corticosteroid. "The most common complication of the disease," Jones said, "came from the side effects of over-treatment itself." Though Jones' treatment for Langerhans cell granulomatosis today forms the standard of care in peer-reviewed journals, it made him a lightning rod for controversy at the time. Then, as now, the doctor was unfazed by the disdain of colleagues. But as his family grew, there were other concerns. Waking up at 5 AM each morning to see patients at the hospital, he also conducted ongoing studies at Memorial and tended to a busy private practice in offices on both the East and West sides of town. He rarely arrived home before 10 PM. "Margery and I thought there must be another way," Jones states. So in 1968, pushing age 40, he packed his bags and his family and headed north --to take over a booming pediatric practice in the bucolic Connecticut town of Hamden, where he hoped for a saner, more manageable life. Little did Jones realize he had purchased not a country paradise, but a residence in the whirlwind, at the epicenter of what would become one of the most bitter medical controversies of the century, the battle over Lyme disease. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:27 Children of Hamden, Children of Lyme While Jones was settling into his new life as Hamden's gentleman country doctor, an artist and mother an hour north on the Interstate, in the tiny, wooded Connecticut hamlet of Lyme, was doing some work of her own. Afflicted with odd rashes, fevers, and joint pain, the woman, Polly Murray, had begun to notice the symptoms in others -in her husband, her children, and many of their friends. Like the pioneering environmentalist, Lois Gibbs, who documented disease clusters at Niagara Falls' Love Canal, Murray set out to prove the existence of a disease cluster in Lyme. Going from house to house collecting evidence from neighbors and friends, Murray irked the likes of real estate agents and business leaders, but with her children and their friends so stricken, and eventually disabled, she pressed on. At the time barely aware of Murray's project, or even the clustered children, the country doctor from Hamden faced a dilemma as well: A new form of juvenile arthritis had mysteriously appeared in and around Hamden, where it struck young patients with disturbing regularity. "It didn't have the deforming characteristics I thought of as rheumatoid arthritis," Jones now says. "I didn't know exactly what it was." But even without a name or suspected cause for the disease, Jones quickly stumbled upon an apparent cure. "By coincidence," he says, " a few of the children with this strange condition also came down with strep. I treated the strep with antibiotics, and in those children, only, the 'arthritis' went away, too." Though the disease remained unexplained, Jones' clinical strategy could not be more clear: He would track his charges, recognizing 'arthritic' symptoms early in the game, and then treat with a week or two of antibiotics, strep or not. "It seemed to me that on 10-14 days of medication," Jones now recalls, "they all got well." Clearly, he reckoned, he was dealing with an infection. And from the nature of its presentation, he theorized it was transmitted by some sort of insect -in other words, vector-borne. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:28 While the children visiting Jones' practice in the town of Hamden got better, their counterparts in the hamlet of Lyme, undiagnosed and untreated, had no such luck. By 1975 two of Murray's children had knees so swollen they could walk only with crutches, and she finally managed to pique the interest of Connecticut's chief epidemiologist, who sent an investigator --a rheumatology research fellow named Allen Steere, recently arrived at Yale. Trained for years as an epidemiologist at the CDC, Steere embraced the chance to play medical detective again. Devoting himself to the task, he first proved the disease clusters were bona fide and then traced them not to nuclear power plants or toxic drinking water, as some residents suspected, but to the Ixodes scapularis tick. It was around that time, Jones recalls, that he happened to meet up with Steere at the hospital while attending grand rounds and had the chance to chat. "It forms a bittersweet memory in retrospect," Jones now says. "Steere was obviously studying the same phenomenon I observed. He thought the disease was spread by ticks, I thought mosquitoes or gnats. I thought the infection was bacterial, based on the outcome in my practice, but he thought not." They would both be partially correct. Publishing findings in 1977, Steere reported an illness called Lyme arthritis, characterized by "recurrent attacks of asymmetric swelling and pain in a few large joints, especially the knee." Attacks would last from a week to months with long periods of remission, Steere added, and would typically recur. The precipitating event was a tick bite, followed by the appearance of a red rash with central clearing -to the general population, a bull's eye. Later that year, in a second publication, Steere replaced the name, Lyme arthritis, with Lyme disease. The reason, he wrote, was an "enlarging clinical spectrum." Studying 32 patients with the same symptoms of erythema migrans, or skin rash, as well as arthritis found in the first study, he now recorded a host of other symptoms: malaise, fatigue, chills and fever, headache, stiff neck, backache, myalgias (muscle aches), nausea, vomiting, and sore throat. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:29 He recorded, as well, migratory joint pains, neurologic and cardiac abnormalities, and elevated markers in the blood. The symptoms were so diverse, in fact, that they could not be used, in and of themselves, to pinpoint Lyme disease as the cause, Steere claimed. "The diagnostic marker is the skin lesion," he instructed physicians. "Without it, geographic clustering is the most important clue." The main difference between the children of Lyme and the children of Hamden, as Jones saw it in the wake of the publications, was that the children living in Lyme were sicker, by far. Thanks to careful tracking and early antibiotic treatment, Jones' regular patients rarely developed advanced forms of the new illness. The untreated children of Lyme, on the other hand, had became experiments of nature: Without antibiotic treatment, their pathology and symptoms progressed to the endpoint, beyond anything Jones himself had seen. If Jones hadn't yet witnessed the severity of the illness it was because, on the issue of bacterial infection and the consequent need for antibiotics, he'd been right. His hunch was validated in 1981, when Dr. Willy Burgdorfer of the National Institutes of Health's Rocky Mountain Laboratory first identified the spirochetal bacteria that cause Lyme disease. Three years later, the bacterial species, Borrelia burgdorferi, was named for him. With this evidence in hand, the doctors at Yale began to treat aggressively, recalls Jones. And thus, when his patients became especially ill, Jones sent them on to New Haven. There, Yale's experts used heavy antibiotic artillery, including intravenous treatments administered over the course of months, to beat back symptoms of the disease. "One child from my practice had Lyme meningitis, and the Yale physicians gave her two months of IV antibiotics," Jones recalls. "When she remained ill, they gave her two months more." For that particular child, four months of treatment seemed to do the trick. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:30 Trading Places But then, everything changed. As the eighties passed, the children coming to Jones' practice presented with increasingly severe disease. Often unrecognized and untreated by other physicians, they had progressed beyond the initial, arthritic symptoms of his first patients, manifesting not only the sweep of problems meticulously recorded by Steere, but many others as well. "I found the disease could impact almost any organ of the body, or the whole body, in systemic fashion," says Jones. While many patients presented with rash and arthritis, of course, cognitive and neurological symptoms were increasingly prevalent. Some patients were blind, some so fatigued they could not sit or walk, and some violent, or apparently autistic, or paralyzed by the sudden eruption of obsessive compulsive disorder (OCD.) Depending upon where the spirochetes gravitated in the body, and what particular strain of bacteria was involved, presentation could be gastrointestinal, neurological, cardiac, dermatological, arthritic, urological, ocular, or a combination of these. There might be just a single symptom, such as a severe, unending headache, or a multitude of symptoms, so that a child's entire body was wracked by pain. At first, Jones continued to treat these children with relatively short-term, oral antibiotics until, one day, a teen-age patient with particularly severe disease would cause him to change his mind. Upon hearing his two weeks of medication had come to an end, the symptomatic boy, then 15 but reportedly sick with Lyme since age 10, posed a question: "I'm getting better, but I'm not well yet, so why not just keep giving me the pills?" Why not, indeed, Jones reflected. He knew from experience, after all, that a complete recovery could be elusive for such children. Often, their state of wellness at the end of treatment was as good as it got; other times, in fact, frequently, children relapsed. The chance of side effects from continuing antibiotics, moreover, paled beside the chance that the boy might actually be right -that continuing medication over a longer time frame might help him continue his recovery. He was still getting better on an almost-daily basis. Why stop now? Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:32 Jones agreed to the little experiment, and the boy kept improving -week in and week out. "It took three full years for the boy to become asymptomatic," Jones says, "but we stay in touch, and he has remained completely well" After that, it became Jones' policy to treat not for an arbitrary number of days, but rather, until symptoms were resolved, sometimes measured in weeks, sometimes years. One child who came to his practice blind, he says, had his vision come back "one piece at a time" for years. When, every so often, the parent of a still-sick child requested the medication cease, Jones observed, the symptoms that had resolved came back. "But if I treated until every last symptom was gone, the child was cured." Treating from the saddle through observation and empirical deduction, Jones viewed Lyme as just a sideline during most of the 1980s. "I still had my regular pediatric practice, and received, quite frequently, referrals for patients with Langerhans cell granulomatosis, my academic expertise." But eventually, as more and more physicians and parents sent Lyme children his way, the practice changed. "I was the country doctor on a tangent," he says, and the tangent was Lyme. As Jones and other physicians treating the sickest Lyme patients expanded their treatment timeline and raised their dosages, as they combined antibiotics to ward off drug resistance and fight a host of co-infections, academic researchers pulled back. One line in the sand, in 1993, was Allen Steere's publication, entitled "The Overdiagnosis of Lyme Disease," in the prestigious Journal of the American Medical Association. Steere didn't mention Jones specifically, but the implication was clear: Jones and his ilk were sweeping too many people under the Lyme disease umbrella, then treating with endless antibiotic therapy that just did not work. Another hit came from the Second National Conference on Lyme Disease Testing, sponsored by the Association of State and Territorial Public Health Laboratory Directors and the CDC in Dearborn, Michigan, in 1994. Not only did the voting committee adopt a two-step testing standard that has been called into question by a spectrum of experts, they also removed from the second test -the Western blot-two markers known to be specific for Lyme disease, and especially prevalent in late stage illness. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:33 Though the CDC said the Dearborn standard was for research and surveillance purposes, only, it was, in practice, widely used to determine or reject the diagnosis of Lyme disease. As the icing on the cake, academic researchers publishing throughout the 1990s held to increasingly restrictive treatment timelines ranging anywhere between 10 and 60 days. Rejecting the notion that infection could survive the antibiotics, they said that any symptoms remaining after treatment represented permanent damage, or another disorder or disease. In the year 2,000, when the Infectious Diseases Society of America came out with treatment guidelines setting the short-term parameters in stone, physicians like Jones found themselves blatantly bucking the authorities and in direct opposition to the accepted standard of care. With a new, more circumscribed disease definition and restrictive treatment guidelines published in the peer-review, Jones and his colleagues were increasingly vulnerable -not just marginalized, but now, openly attacked. They were virtually expunged from the peer-review literature. Jones was removed from the roster of medical insurance companies for treating too much Lyme disease and these days, can accept no insurance at all. In Oregon, in Michigan, in Texas, and recently, in New York, Lyme disease doctors with aggressive treatment philosophies have been brought up on charges of negligence or malpractice by state medical and ethics boards. Jones himself, though protected in the state of Connecticut, has, on his desk at any given time, a pile of official complaints made against him by doctors in academic medicine. Lyme Legacy Addressing the challenges recently in front of patient and physician supporters at a Lyme Disease Association meeting in Princeton, New Jersey, Jones spoke openly, throwing down the gauntlet and galvanizing the crowd. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:34 "Children with Lyme disease must not become victims of hypocrisy," he said. "We all know that children with a delay in diagnosis or inadequate therapy can be difficult to treat. No study has ever shown an optimum time for treatment, or that two to six weeks of antibiotics always result in eradication of the bacteria or a cure. But there is ample documentation in the peer-review literature that Borrelia burgdorferi spirochetes can survive antibiotic treatment, for one to six months or longer. We know there are more than 300 strains of these bacteria, and that different strains cause different symptoms and require different treatment strategies. Persisting symptoms indicate persisting infection. Children with Lyme disease do not have 'post-Lyme syndrome,' psychiatric disorder, or fibromyalgia. They are infected with Borrelia burgdorferi, and they have Lyme disease." Of course, it helps when preaching to the choir. With his colleagues up on charges and facing potential extinction, is Charles Ray Jones worried? Not really. "If I were younger, if I had children to support or put through college, if my wife were still alive, I'd be scared as hell," he says. "But here in Connecticut, the attorney general is enlightened, and most complaints against me are thrown in the trash." Besides, he contends, the winds of change are blowing, though most are unaware. Starting the week the New England Journal of Medicine published a study dismissing long-term treatment for chronic Lyme disease, in 2001, Jones says, he has received a steady stream of calls and queries from physicians supposedly ensconced on the "other side" of the fence. Mostly infectious disease specialists from the very reaching hospitals known for narrow diagnostic standards and restrictive treatment protocols, the callers have expressed alarm at the swing of the pendulum over the troubled landscape of Lyme. The calls are secret, Jones says, the callers still "in the closet" when it comes to Lyme and other tick-borne disease. Yet week after week for months now, these "closet" practitioners have been sending sick children through New Haven's back door, to a dim and narrow corridor and the homey, cavelike office of a grandfather in a running suit, Charles Ray Jones. Blind and crippled, nauseous and aching, unable to tolerate noise and light, to focus, or to effectively learn, these young patients have been burdened with incurable diagnoses like fibromyalgia and chronic fatigue syndrome. Odpowiedz Link
artur737 Re: Pomnik Jones'owi? 13.12.07, 21:35 Deemed untreatable, possibly psychotic, by family pediatricians and the high priests of academia, they are headed for the trash heap of throwaway children. -with one last-chance stop to see Jones. They continue to arrive despite his notoriety because, quite frankly, they have nowhere else to turn. But how long can a lone septuagenarian keep his finger in the dike? Can he do more -affect true change-by transmitting his knowledge to the world? Jones' decades of clinical experience have never been committed to writing or taught outside his small circle. And while he has the monopoly on a burgeoning market -Lyme disease in the U.S. is at an all-time high- he cannot find a young physician to work by his side full-time and commit to assuming his practice when he's gone. With his colleagues under investigation, their careers in peril, an heir may be hard to find. One ray of hope comes from the newly established Charles Ray Jones Endowed Student Fellowship at Columbia University, which allows him to train one medical intern in his practice each summer. In 2001, it was Megan Peimer, a second-year medical student at Columbia College of Physicians and Surgeons, who worked alongside Dr. Jones. Peimer, who also spent her time absorbing the peer-review literature on Lyme disease and writing up Jones' classic cases, says her hope is to foster a more rational attitude about tick-borne disease. "Lyme is a very complex entity," says Peimer, "and Dr. Jones is one of the only physicians I have seen or heard of to amass a clinical knowledge of it in terms of kids. He refuses to blanket his specific observations and individual patients with general pronouncements from journals, or to relinquish intellectual rigor to follow the crowd. He has a dedication to teasing out the etiology for each patient and situation, to synthesizing his knowledge and observations, and to treating based on hard facts." Will Peimer specialize in Lyme disease? "I'm devoted to international medicine," she says, "but when a child with Lyme disease comes to my practice, thanks to Dr. Jones, I will know how to recognize it, and I will know how to treat." Peimer believes the true value of the fellowship will be to spread Jones' knowledge wide, resulting not in the creation of one or two more Lyme disease physicians but rather, many physicians who understand Lyme disease. Jones is admired, as well, by other MDs treating patients with chronic tick-borne disease. "I have had the chance to observe him examining patients, and he's a highly astute clinician. The way in which he interacts with children is absolutely wonderful," says Kenneth Liegner, a physician from Armonk, NY. "Dr. Jones is an international treasure Odpowiedz Link
artur737 Re: "Sezon na Kleszcza" cz druga 23.01.08, 16:29 canadafreepress.com/index.php/article/1522 W innym watku pisalem jak Kanadyjskie Stowarzyszenie Chorych wypuscilo notatke prasowa opisujaca, ze rzad nie chce ujawnic powodow dlaczego kanadyjskie testy na borelioze wychodza praktycznie zawsze ujemnie (w Kanadzie nie ma prywatnych laboratoriow, wiec jak wynik jest ujemny to powtarzac mozna wylacznie za granica). Jako powod podano, ze sa to informacje tajne dotyczace bezpieczenstwa kraju. Media podchwycily: National Security, Access to Information Canadian Government in denial about the toll Lyme Disease is taking on Canadians By Judi McLeod Wednesday, January 23, 2008 Imagine the mental agony of being told by Canadian doctors that you do not have Lyme disease but having a diagnosis in hand from American doctors saying that you do. What do you then do if the Canadian federal government flatly denies your Access to Information request? That’s the medical dilemma of Gordon Anderson, who asks “What are we going to do?” And there are many other average Canadians asking the same question without getting the answers. Claiming that it is a matter of “national security”, the Canadian government insists that Canadians have no right to records that measure the ability of our national medical laboratory to detect “the fastest growing animal to human disease in the northern hemisphere”. It’s a worry you won’t find in media headlines, but a worry Canadians left in the dark about lyme must take to their beds every night. It’s not that the possibilities of coming down with Lyme Disease is remote. The possibilities of getting Lyme Disease originate from something that there is plenty of --the Great Canadian outdoors. Ticks that carry Lyme Disease can be found on your own front lawn, on your pets, on logs, in tall grass or common brush. The safest rule of thumb advises that if you are outside, do not brush up against tall grass or sit on logs. We all complain about bureaucratic red tape, but surely the denial of accurate health records is of the kind that hurts most. “The Canadian Lyme Disease Foundation decided they must find out how well our federal medical laboratory in Winnipeg does at detecting Lyme disease in humans,” said James Wilson, President of the Canadian Lyme Disease Foundation. Fully certified, proficiency tested and accredited laboratories in the U.S. have been finding that several thousand Canadians are actually positive for Lyme Disease after a negative Canadian test. Many of these Canadians had been given diagnoses ranging from multiple sclerosis, mental illness, to chronic fatigue syndrome. Odpowiedz Link
artur737 cd kanadyjska notatka 23.01.08, 16:30 But the successful outcome of Lyme disease treatment demands early diagnosis, so the Canadian Lyme Disease Foundation sought to find out why Canadian lab tests in so many instances are negative followed by a positive U.S. test. These patients only then get the treatment they need. The proof is in the pudding, they do remarkably well in recovery after having been left sick for years in many instances. Proficiency testing of laboratories measuring their ability to detect specific disease is required in most jurisdictions for laboratories to retain certification. The U.S. labs are proficiency tested and have excellent results. We expect similar results from our federal labs but we will never know if a small group of people who hold the lives of Canadians in their hands has their way. “If denying our request because of “national security” sounds absurd to you, it did to us as well,” says Wilson. “Something is going on. One provincial access to information request revealed minutes of a meeting involving provincial medical authorities and our federal laboratory representatives who discuss hundreds of unique cases of lyme disease in only a three-year period in that province. Officially, in that same three-year period the reported number of cases was zero. “We had also previously asked to be allowed to participate in proficiency testing of our Canadian labs but that request was quickly denied as well. “To put this in proper perspective, Canada has some of the highest rates in the world of diseases and conditions sharing the same symptomology as lyme disease but we have virtually no lyme disease, in stark contrast to every other northern hemisphere country. There are 1.5 million Canadians suffering from disease of unknown origin. Many of these mirror the symptoms of chronic lyme disease. We want to know how many are in fact lyme. We believe that number will prove to be substantial. It is implausible that Canada has protective border crossings that prevent birds that are carrying lyme disease from entering our country. It is much more plausible that we have many cases of lyme disease. Our cold temperatures do not account for our low numbers as previously stated by the government. Finland, a much colder country, has thousands more cases than Canada. “The best way to prove the prevalence of lyme in the bodies of Canadians would be through aggressive research including multiple tissue biopsies from skin and internal organs of those individuals who share the symptoms of lyme disease, and post-mortem study of those who did not survive the onslaught of their illness. We have had many requests Canada wide from very sick individuals or their family members who want to leave their or their loved ones remains for this specific research. Most have not been diagnosed with lyme, but suffer all of the symptoms.” Odpowiedz Link
artur737 Re: cd kanadyjska notatka 23.01.08, 16:31 Background information the Canadian government is not talking about: Our friendly migratory birds transport the ticks that carry Lyme disease around at random. Biting insects such as mosquitoes and horse flies have also been shown to transmit the disease. In the U.S. where our springtime migratory birds come from there is an estimated 200,000 human cases of Lyme disease each year and this is increasing year over year. Our government labs confirm fewer than 60 cases per year in Canada. We do know Lyme is being misdiagnosed as other illnesses, or not diagnosed at all. Lyme disease is robbing many Canadian children of their youth and adults of their careers. Lyme disease can cause serious long-term health issues if not identified and treated early. It can affect the brain, eyesight, hearing, nervous system, muscles, joints, digestive tract, skin and most organs including the heart, liver, spleen, and kidneys. Because Lyme disease is a multi-system disorder many systems of the body can be affected at once. Odpowiedz Link