Dr Oz z USA zainteresowany tematem Bb

21.11.08, 05:02
Jest to bardzo dobra wiadomosc, bo jest on jednym z tzw znanych, telewizyjnych
lekarzy. Nadto zna wiele innych wplywowych postaci.
    • artur737 Re: Dr Oz z USA zainteresowany tematem Bb 21.11.08, 05:12
      tzn Amerykanie glownie licza na to, ze otworzy on drzwi do programu prowadzonego
      przez Oprah Winfrey. Chociaz moze sie to nie zdarzyc, bo Oprah juz kiedys
      zrobila program o Bb (dosc kiepski) a mimo to miala pozniej z tego rozne
      nieprzyjemnosci.
      • wroteknowynick Re: Dr Oz z USA zainteresowany tematem Bb 21.11.08, 13:41
        Jakies oficjalne problemy miała ?
        • artur737 Re: Dr Oz z USA zainteresowany tematem Bb 21.11.08, 22:44
          Nie widzialem tego programu, byl zrobiony wiele lat temu, ale podobno wyszedl
          strasznie. Ludzie uczestniczacy w programie byli nieprzygotowani medialnie i
          wyszli na jakis paranoikow.
          Oprah otrzymala bardzo duzo krytycznych uwag, a ona tego nie lubi bo to krolowa
          popularnosci. Od tego czasu jej wspolpracownicy mieli zakaz zbierania materialow
          o boreliozie. Poprzez wplyw bliskiej wspolpracownicy Oprah'y ponad rok temu na
          stronie internetowej Oprah zostal stworzony watek boreliozowy na ktorym pojawilo
          sie kilkaset opisow wlasnych przezyc. Wszystko to jednak nie przekonalo Oprah do
          ponownego dotkniecia tematu, na ktorym sie juz raz sparzyla.

          Od wielu lat Oprah standardowo unika tematow kontrowersyjnych bo pare razy sie
          na nich straszliwie przejechala.
          Ostatnio Stowarzyszenie Hodowcow Bydla z Texasu ja zaatakowalo za stwierdzenie,
          ze obecne praktyki hodowlane uragaja etycznej produkcji zywnosci (hodowla bydla
          jest obecnie czyms potwornym, bydlo zamiast trawy zjada pasze, ktora pochodzi z
          innych zabitych zwierzat oraz jest masowo nastrzykiwane hormonami, o ktorych
          wiadomo, ze sa rakotworcze dla konsumentow mleka i miesa. )
          Hodowcy sie tak dorobili na tej nekrofilnej produkcji zywnosci, ze Oprah poczula
          sie bardzo zagrozona przez ich prawnikow pomimo swojego bogactwa.
          Podobno ledwo sie wywinela od olbrzymich kar finansowych liczonych w milardach,
          ktore mialy skompensowac straty hodowcow po tym programie. I to wszystko tylko
          dlatego, ze po prostu powiedziala prawde w TV.

          Swiat zrobil sie straszny.

          Podobne praktyki stosuja (powiem przy okazji) duze firmy farmaceutyczne. Niech
          ktos sprobuje je zaatakowac na tyle, ze poczuja sie zagrozone to moze posmakowac
          smaku i potegi.
          • artur737 Re: Dr Oz z USA zainteresowany tematem Bb 21.11.08, 22:50
            Tu jest wiecej info o Dr Oz
            www.oprah.com/article/health/wellnessandprevention/oz_resources_bio/1
            • artur737 Re: Dr Oz z USA zainteresowany tematem Bb 21.11.08, 22:54
              A tu jest wiecej o tym watku na stronach Oprah, ktory powstal wiecej niz rok temu.

              Oprah appeal for Lyme patients to tell their stories on TV


              07/09/07
              By Dr. SHARON EISENHOWER/Star-Gazette Health Consultant
              Respond to this story
              Email this story to a friend



              OPRAH: Spotlighting Lyme disease. Oprah Winfrey has opened the message boards on
              her Web site to victims of Lyme disease who are telling their stories in
              emotional, inspiring and sometimes nightmarish detail.

              The carrot? Participants might be selected to speak out on the talk-show queen's
              TV show.

              And once on the air, they would have a unique opportunity to help bring pressure
              to bear on the medical industry to find an accurate test for Lyme - and a sure cure.

              Here at National Lyme Report - where we've been fighting tooth-and-nail for Lyme
              patients for years - we commend Ms. Winfrey.

              "And we encourage all National Lyme Report readers to contribute to Oprah's
              message boards as we strive together to get the word out: Innocent people are
              suffering for want of a diagnosis, for want of Lyme-literate doctors, and for
              want of treatments that work in every case and not just for some people some of
              the time," National Lyme Report editor Derek Clontz said.

              Excerpts from the message boards follow. You can visit Oprah's site and post
              your comments by clicking Oprah Lyme Boards . We encourage you to mention
              National Lyme Report ( our Web address is www.star-gazette.net ) by name in your
              comments to help spread the word:

              Trusted-source, up-to-the-minute news and support are available seven days a
              week, 365 days a year, from National Lyme Report staff, editors and our growing
              family of 60,000 readers. We are, in fact, the only Lyme site on earth that
              answers every query, every plea for help and every request for additional
              information in a fast, FREE, professional and caring way.


              "We've helped thousands of people get the information and help they need and
              deserve," said Clontz. "We take our mission seriously. We go above and beyond
              the call of duty without regard for the bottom line.

              "Our family of readers can help us by promoting National Lyme Report and the NLR
              site."

              Here are excerpts from Oprah's message boards with the board moderator's "call
              to action" immediately below in italics and quotation marks:

              "Lyme disease: fastest growing disease in the U.S. Medical and legal communities
              can't agree on effective treatments. Share your experience with Lyme. There are
              so many of us, we need to unite and be heard."

              - ... my sons will forever suffer the devastation that was caused by a lack of
              diagnosis at an early enough stage. Each of them has arthritis, leg and neck
              pain, difficulty sleeping at night, mood swings, (they) can be irritable,
              horrific headaches, diarrhea with no explanation and many more symptoms too
              numerous to list - both cognitive and physical.

              - ... my two older children were diagnosed with Lyme in June 2005. They
              developed flu symptoms and rashes after tick bites. Both were treated with four
              weeks of amoxicillan. My son recovered, but my daughter (now 4) never seemed the
              same.

              She "looked fine" but as her mother, I knew she was not well. She couldn't walk
              even 1/4 mile without resorting to tears, but my judgement was questioned by her
              doctors and her pre-school teacher. Only my family listened to me.


              Her list of symptoms was huge:

              * joint pain,

              * eye pain,

              * headaches,

              * extreme fatigue,

              * abdominal pain after every meal,

              * significant lack of appetite,

              * sleep problems,

              * bladder problems,

              * night sweats,

              * periodic fever,

              * mood swings,

              * and more.

              What really pushed me to research the problem was when at 3 years old she
              repeatedly told me "I hate myself" - and "I wish I was dead".

              - I am barely hanging on to my job, and my quality of life makes me question why
              I keep going. No one should have to live with this pain, and to be dismissed and
              ridiculed by medical “professionals” is salt on the wound.

              - I was so sick with feeling like poison was going through my body. Had to get
              on auto-immune surpressant as my liver was being attaced by lyme, or my own
              immune system or both. Turned out I did not have or get Lupis because this new
              doctors at least acknowleged the lyme. and at least gave me oral antibiotics.

              - I was working and in my senior year at University when a strange rash showed
              up on my waistline, twice, Six weeks apart.

              Mid-semester I was overcome with chronic fatigue, chronic pain, anxiety,
              inability to concentrate, headaches, uncoordination, muscle weakness and paralysis.

              Told I had severe anxiety I began a 12 year treatment with a psychiatrist for
              mental illness only to find out I have by this time Late Stage Lyme Disease.

              • artur737 Re: Dr Oz z USA zainteresowany tematem Bb 21.11.08, 23:07
                Oprah jest bardzo wplywowa osoba. Mysle, ze gdyby nie ona i jej pomoc w kampani
                wyboreczej to Obama by nigdy nie zostal prezydentem USA.

                Ale juz po wyborze na prezydenta, Obama wyraznie powiedzial do Oprah, ze ta juz
                nie bedzie miala na niego wplywu w czasie prezydentury i ich stosunki sie bardzo
                ochlodzily.
                Programy zrobione przez Oprah sa ogladane przez dziesiatki milionow ludzi na
                calym swiecie.
                • artur737 Re: Dr Oz z USA zainteresowany tematem Bb 24.11.08, 09:22
                  Program na radiu satelitarnym ma byc 26 listopada, choc dokladna godzina nie
                  jest znana, radio jest znane z tego, ze przesuwa godziny nadawania, wiec jezeli
                  ktos chce sluchac to musi je miec wlaczone przez dluzszy czas.
                  Mozna sie za darma zarejstrowac i przez miesiac miec za darmo dostep do szeregu
                  stacji radiowych satelitarnych w tym kanal przyjaciel Oprah'y.

                  tinyurl.com/6fyw7u

                  Ten program moze okazac sie wazny dla tworzacej sie historii ruchu.
                  • artur737 Re: Dr Oz z USA zainteresowany tematem Bb 26.11.08, 16:06
                    Wiec juz ten godzinny program odsluchalem, jezeli ktos zna angielski to program
                    bedzie ponownie nadawany internetowo za 8 godzin (o ile mi sie nie pomilily
                    strefy czasowe). Trzeba sobie uruchomic dostep do radia satelitarnego za darmo
                    na okres probny na 30 dni. Jest to latwe. Pozniej trzeba przejsc do dzialu
                    HEALTH i pozniej po prawej znalezc kanal Friends of Oprah (o ile pamietam)
                    Byc moze ktos umial nagrac i kiedys udostepni internetowo bardziej na stale.

                    W programie bylo m.in.:
                    Widac, ze zakaznicy cos kreca bo na pytanie dlaczego nie robi sie badan
                    naukowych nad borelioza odpowiadaja, ze niepotrzeba, bo o boreliozie wiadomo juz
                    wszystko. Takiego stwierdzenia nie wyglosi nikt kto choc troche zna sie na nauce.
                    Liczba nowych zakazen w USA (ta realna) jest 10 lub nawet 100 razy wieksza niz
                    ta oficjalnie uznana i wynoszaca 20000. Czyli nawet 2 mln nowych przypadkow
                    rocznie.
                    Borelioza jest ciezsza choroba niz AIDS wg znanego LLMD, ktory leczy obie choroby.
                    Borelioza jest choroba stygmatyzujaca, dlatego wielu slawnych ludzi sie do niej
                    nie przyznaje bo boi sie o swoja pozycje, prace i kariere.
                    Lekarze LLMD to nie jacys oszusci albo naciagacze tylko lekarze z prawdziwego
                    zdarzenia, ktorzy robia wszystko aby pomoc swoim chorym.
                    Jezeli ktos zachoruje na Bb to nalezy szukac LLMD
                    Testy wykrywaja tylko 50% przypadkow boreliozy.
                    Chorzy z innymi chorobami tez kiedys byli bagatelizowani co wynikalo z
                    niedostatkow badan. Np Lupus uchodzil kiedys za chorobe psychosomatyczna. AIDS
                    tez dlugo nie byl uznany.
                    Borelioza jest problemem miedzynarodowym a nie tylko USA.

                    Dr Oz chcialby otrzymac maile od chorych w ktorych prosi o opisanie jak kto
                    dlugo chory i jak idzie leczenie.
                    Chcialby widziec czy otrzyma np 10 maili czy kilkaset.
                    Tu jest forma do emaila
                    tinyurl.com/5hccol

                    • wroteknowynick Re: Dr Oz z USA zainteresowany tematem Bb 26.11.08, 16:19
                      "Widac, ze zakaznicy cos kreca bo na pytanie dlaczego nie robi sie badan
                      naukowych nad borelioza odpowiadaja, ze niepotrzeba, bo o boreliozie wiadomo juz
                      wszystko."
                      katastrofa
                      • artur737 Re: Dr Oz z USA zainteresowany tematem Bb 26.11.08, 17:00
                        Jak ktos zna angielski to niech napisze do niego maila. Niech ma dowod, ze to
                        nie tylko problem w USA.

                        Strona bierze do 200 slow na email wiec nie warto pisac wiecej bo obetnie.
                        • artur737 Raport Alison z lymenetu 26.11.08, 17:12
                          Dr. Oz said that his mother in law is the one who told him that he had to watch
                          Under our Skin. He also got a copy of it from medical reporter Kathy Fowler who
                          said he had to see it. So he watched it. Before he was done, his whole family
                          was in the room ..."captivated by it".

                          Andy Abrahams is on. Also introduces Kathy.

                          Kathy says at first in her reporting she covered Lyme disease as everyone did,
                          e.g. as easy to treat. She has Lyme disease. Had the bullseye rash. Sounds like
                          one dose of abx. 10 years later she developed a bunch of sxs.

                          People were telling her she had to do the *real* story about Lyme disease. She
                          started investigating it for both profesisonal and personal reasons not knowing
                          she had it but curious.

                          Andy Abrahams: Dr. Oz asked why he did a docu about Lyme. Andy said he didn't
                          take it seriously at first, but his twin sister had Lyme disease and he
                          remembers her lying on the couch, so thought it was just a "kvetcher's" disease.

                          But then 8-10 years later in California a friend of his got very sick. First dxd
                          with MS, then ALS. But finally got dxd with Lyme. So he was wowed by the reality
                          of Lyme he discovered and once he looked into it more and more he was shocked at
                          the misunderstandings about the disease.

                          Dr. Oz says he called ID docs and friends of his who were Lyme experts after
                          watching the docu. He got back generally the belief that they don't think that
                          chronic Lyme exists. He was surprised. But they said they didn't know for sure.
                          One doc said that he thinks there are many other viruses that causes people to
                          get sick and Lyme might be a part of it.

                          Kathy says she got so many calls from doctors telling her to stay away from the
                          story. That really prompted her to ask more questions. Most shocking thing she
                          discovered is that a lot of people in med and sci community were very closed
                          minded. Had doctors tell her it doesn't exist.

                          She talks about how horriffic the tests are after being asked about accurate
                          they are. Miss 50 percent

                          q: Can you get more specific tests?

                          Andy says that a lot of specialists use Igenix. But most docs won't order from
                          there. He says even results from Igenex may not be accurate.

                          KF says that there are many strains of Lyme that don't show up on tests.

                          AA says this is a stigmatized disease. Commends Kathy for talking about her Lyme
                          disease. He knows of celebrities who did not want to talk about it and come out
                          with their illness. Compares it to the early days of AIDS.

                          Mentions a Dr who treats both AIDS and Lyme patients and says that this Dr says
                          that his Lyme patients are more debilitated than his AIDS patients.

                          Dr. Oz asks why KF is willing to talk about Lyme since it's stigmatized. She
                          says it came to the point ... references the movie and Dana who says "loot at
                          me, how do I look?" friend says she looks great and she says you have NO
                          idea.... she describes immense pain ... but then she started slurring words on
                          air, neuro problems, so it affected her ability to do her job but trying to keep
                          it secret.

                          One day she is typing and her hands freeze up and she can't type. Couldn't talk
                          and had to be on the air in an hour.

                          Said she told bosses she thought she may have Lyme so she was going to be very
                          careful on reporting it so as not to be biased. Says she got complaints from
                          both sides of the Lyme issue so she figured she was doing ok.

                          Dr Oz gives stats - 20,000 reported cases, CDC estimates 200,000 may be
                          underestimate. Oz says we may be seeing Lyme because we're invading spaces where
                          deer and ticks live. Hmmm.

                          Dr. Oz asks Andy to walk through the disease and filming about it.

                          A talks about discovering so many people who were sick ... in allegiance to them
                          he made the film.

                          Dr Oz mentions the political factions that are moving against people with Lyme
                          (but without taking a stance on either side of the argument).

                          AA mentiones many of the other dxs people were getting and that so many of them
                          were told that it was all in their head.

                          q: how expensive are txs?

                          KF: can range to hunudreds of thousands of dollars.

                          AA didn't make film about tx for Lyme disease. More about controversy about
                          acute vs chronic Lyme.

                          q: how long is long term abx?

                          AA: months to years. Can be tens of thousands of dollars over months for tx.

                          OZ: Lyme disease to him is a lot like Syphilis. Which makes it much more
                          difficult to treat. As a physician you look at the movie, see Jones and Jemsek,
                          charging a lot of money to treat people which Oz is not critical of, but
                          treating people without clinical backing (Ed note: ARRRRRGH) but yet having much
                          anecdotal success with many people getting better.

                          Oz questions about spending a lot of money on abx therapy that might be really
                          helpful for some people, but not so for others, and poses the question, how much
                          is it worth to save a life? According to him, looking at it objectively, the
                          cost is about $100,000.

                          (Ed note: I think he's waffling on the whole Lyme controversy, but to be
                          generous, I will say that it appears he is trying to be objective. He's
                          definitely not picking a side, though seems to be leaning a little bit to the
                          chronic side).
                          • artur737 Re: Raport Alison z lymenetu 26.11.08, 17:12

                            q: Why wouldn't one set up a clinical trial to set up the efficacy of long term tx?

                            Oz says the odds are stacked. But you need a dx. Also hard with people who have
                            a constellation of sxs.

                            Fibromyalgia is mentioned. Oz says it can be caused by a lot of things including
                            Lyme or viruses.

                            Oz says you can't prove that people have chronic Lyme so you can't do trials on
                            them. AA says scientists need to have a disease clearly defined in order to do
                            clinical trials. But since Lyne has so many sxs, this is the root of the problem.

                            Oz asks AA what he would do if he was Dr Jones or Jemsek. AA says he would do
                            what they are doing
                            • artur737 Re: Raport Alison z lymenetu 26.11.08, 17:14
                              Oz asks about # of people with chronic Lyme. AA says anywhere from 10 to 100
                              times from what is reported.

                              Oz - if AA had chronic lyme what would he do? AA would go to a LLMD he says. Oz
                              asks if he would do abx for this if he had it. AA says not sure long term abx
                              alone is the cure. Also would use alternative medicine.
                              • artur737 Znaczenie tego programu 26.11.08, 17:22
                                Trudno powiedziec ilu bylo i bedzie sluchaczy tego programu.
                                Kiedys bylo tylko kilka stacji radiowych satelitarnych wiec latwo bylo osiagnac
                                np liczbe 20 mln sluchaczy. Teraz jak wiadomo konkurencja jest duza wiec
                                sluchacze rozchodza sie na rozne kanaly. Wielu ludzi, w tym ja, sluchaja radia
                                wylacznie w czasie jazdy samochodem.

                                Oczywiscie jest nadzieja, ze program bedzie jeszcze w przyszlosci transmitowany
                                wiecej razy bo programy Dr Oz ida codziennie a przeciez on nie jest w stanie
                                codziennie robic nowego.

                                Niewatpliwie byl to program w ktorym problem boreliozy w USA zdecydowanie sie
                                przegryzl do srodowiska zdrowych. Bez filmu Under our skin to sie przedtem nie
                                udawalo.
                                • artur737 Re: Znaczenie tego programu 01.12.08, 23:57
                                  Wlasnie sie dowiedzialem, ze Dr Oz bedzie probowal zrobic program o boreliozie
                                  na glownym telewizyjnym programie OPRAH'Y.
                                  A on zna ja dobrze osobiscie i bywa tam czestym gosciem.
                                  • artur737 Re: Znaczenie tego programu 02.12.08, 00:01
                                    Kto zna angielski to niech opisze swoja historie oraz leczenie w mailu do dr Oz

                                    Mozna maksymalnie wpisac okolo 200 wyrazow, wiec nic dlugiego.

                                    www.oprah.com/plugform.jsp?plugId=495&referer=
                                    • franiolek1 Re: Znaczenie tego programu 02.12.08, 09:31
                                      Programy beda robione w radiu i telewizji, jezeli w forach po
                                      programach bedzie wiele wpisow. To jest dla redakcji wskaznik czy
                                      temat jest "chodliwy". Jezeli po audycji nstapi cisza, bez reakcji
                                      ze strony sluchaczy lub telewidzow, lub czytelnikow - temat ma wiele
                                      szans zejsc do lamusa.
                                      • artur737 Re: Znaczenie tego programu 03.12.08, 21:17
                                        Tu jest caly program pprawie 50 min. Bedzie tam krotko. Kto chce to niech
                                        sciagnie poki sie daje.

                                        www.zshare.net/audio/51988431783ad036/
                      • stachenka Re: Dr Oz z USA zainteresowany tematem Bb 06.12.08, 13:52
                        wroteknowynick napisał:

                        > "Widac, ze zakaznicy cos kreca bo na pytanie dlaczego nie robi sie badan
                        > naukowych nad borelioza odpowiadaja, ze niepotrzeba, bo o boreliozie wiadomo ju
                        > z
                        > wszystko."
                        > katastrofa

                        Dlaczego katastrofa?
                        Im bardziej się te łosiotry skompromitują tym lepiej dla nas.
                        I nawet lepiej jak pierdzielą coś bardziej ogólnego niż o samych krętkach, bo
                        więcej ludzi zauważy właśnie to, że pierdzielą.
                        • nataszkam Re: Dr Oz z USA zainteresowany tematem Bb 06.12.08, 20:57
                          stachenka napisała:


                          > Im bardziej się te łosiotry skompromitują tym lepiej dla nas.
                          > I nawet lepiej jak pierdzielą coś bardziej ogólnego niż o samych
                          krętkach, bo
                          > więcej ludzi zauważy właśnie to, że pierdzielą.

                          Co Ty opowiadasz?? Nie wiesz, że KAŻDY lekarz jest z założenia
                          wybitnie inteligentny i żaden chory (tym bardziej z neuroboreliozą
                          psychosomatyczną wink ) mu nawet nie dorówna?

                          "Zaś pacjent jest w stanie zawsze ocenic kulturę osobistą lekarza i
                          ma do tego
                          prawo. Czasem nawet w stanie jest trochę oceni go merytorycznie ale
                          pod trzema
                          warunkami:
                          1. Jest inteligentny (rzadkośc, ale się zdarza)
                          2. Cierpi na chorobę wystarczająco dokuczliwą i przewlekła by
                          znalazł czas o
                          niej poczytac.
                          3. Cierpi na chorobę dosc rzadka by lekarz nie bił go a priori na
                          głowę wiedzą o
                          niej.
                          Jest to jednak nieczęsta sytuacja. "


                          forum.gazeta.pl/forum/72,2.html?f=305&w=87865097&a=87880676
                          • stachenka Re: Dr Oz z USA zainteresowany tematem Bb 06.12.08, 21:49
                            nataszkam napisała:
                            >
                            > Co Ty opowiadasz?? Nie wiesz, że KAŻDY lekarz jest z założenia
                            > wybitnie inteligentny

                            No ja wiem, przechodzi się przez próg akademii medycznej i nagle IQ wzrasta do
                            potęgi nawet nie będę zgadywać której. Fabryka Übermensch'ów.

                            > i żaden chory (tym bardziej z neuroboreliozą
                            > psychosomatyczną wink ) mu nawet nie dorówna?

                            Dlaczego akurat chory?
                            • nataszkam Re: Dr Oz z USA zainteresowany tematem Bb 06.12.08, 22:01
                              stachenka napisała:

                              > Dlaczego akurat chory?
                              >
                              ojjj, się czepiasz tongue_out

                              Bo reszta jest niezdiagnozowana tongue_out
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