syndrom Reynaud

Gość: Artur Re: syndrom Reynaud IP: *.sasknet.sk.ca 22.06.04, 19:10

O ile wiem, to nie ma jakiegos super skutecznego leczenia. Czasem probuje sie dawac troche hormonow tarczycy ze zmiennym skutkiem. Profilaktycznie mozna chronic rece przed zimnem i poprawiac krazenie co troche opisane jest ponizej. Moze troche pomoc, ale cudow nie ma.

Keep Warm
Remember that changes in temperature are worse than cold alone. Keeping your head and torso warm enables blood to flow more freely to the extremities. Always dress in loose layers of blended fabrics, including a sweater. Silk long underwear is a good way to protect yourself against chills without overheating. Wear socks (cotton over wool) and mittens to bed. Use an electric blanket and turn it on before you get into bed to warm your sheets. Be sure to wear a warm hat and perhaps earmuffs, since most body heat escapes through the head. If you are going to be outside, try chemical "heaters" in your socks and mittens. Always cover exposed skin, including nose and cheeks, if it is cold and windy. If you are in pain, consider it a warning signal from your body and go inside. Don't get wet, because water cools the skin as it evaporates (the same is true for sweat--wear an underlayer to wick away moisture). Be prepared for changes in your environment by carrying a bag of clothing with you--keep one in your car and workplace. Ask friends and family for help and modify your surroundings to minimize your exposure to cold. Have someone else defrost your refrigerator or buy a frost-free model. Park your car in a protected area and ask someone to start it and crank up the heater 15 minutes before you go out. Drink warm beverages. A hot water bottle is useful, especially on car trips. Consider moving to a warmer climate.
Protect Your Hands from the Cold
Mittens are far more effective at keeping your hands warm than gloves, because they pool the heat from the entire hand. Wear mittens whenever possible, especially when handling cold or frozen food, and carry them with you; also wear "wristlets," which close the gap between the sleeve and the mitten. Damp cold is the most likely to precipitate an attack. Never clean vegetables under cool running water. Use warm water or, better yet, take advantage of the prepared vegetables available in produce departments. Start running your bath or shower ahead of time so that you do not touch cold water. Make sure your garden hose does not leak so that your hands will not become wet when using the hose. Use insulated cup holders and straws for cold beverages. Do not hang wet clothes out or shovel snow.
Avoid Substances that Make You Vulnerable to Chills
Smoking is a risk factor, because nicotine constricts blood vessels (Herrick et al. 1994). If you smoke, quit. Avoid second-hand smoke. Caffeine is also a vasoconstrictor and is found in many hidden sources, such as chocolate, some aspirin preparations, teas, and medications. Birth control pills, most over-the-counter decongestants, cold remedies, and diet pills should also be avoided. Some migraine headache, blood, and heart medications may also cause Raynaud's symptoms.
Take Good Care of Your Skin
Use a cream to keep your hands soft and protect them with gloves when using detergent, using harsh chemicals, or gardening. Keep fingers and toes dry with talcum powder. Be careful not to injure the skin in affected areas, and treat injuries without delay. Even minor cuts and scrapes take longer to heal and may be more susceptible to infection when circulation is impaired. Call your healthcare provider if the affected body part develops an infection or an ulceration.
Find Ways to Reduce Your Stress Level
Since stress is a common precipitating factor, many people benefit from relaxation techniques such as visual imaging, meditation, or massage. Find some time to relax every day, even if it is only for a few minutes. Avoid whatever stressors you can and attempt to minimize stress on your job.
Avoid Precipitating Activities
Episodes can also be brought on by operating vibrating equipment (chainsaw, jackhammer, drill), including the vacuum cleaner (wearing oven mitts can reduce the vibrations), or by repetitive hand motions (typing, playing the piano or guitar, sewing, or chopping and dicing food). Do not carry heavy shopping bags with handles that can restrict blood flow to your fingers.
Improve Circulation
Regular movement and exercise help to keep your skin flexible and maintain better circulation both by improving cardiovascular fitness and by stimulating blood flow. A warm bath for 20 minutes before bed each night may improve your circulation.
Rewarming
When you have an attack, try to stay calm. Gently rewarm your fingers and toes as soon as you can, using the following strategies. The sooner you respond, the easier it will be to restore circulation and the less chance of damage there will be. Just one prolonged instance of Raynaud's syndrome can lead to tissue death, gangrene, and possibly a need for amputation; consider each attack an emergency and respond immediately. Try motion first (because you can do this instantly and perhaps avert the need for further measures), then moist heat. Always be prepared with a variety of rewarming strategies appropriate to the different environments in which you spend your time.
Place your hands under your armpits or between your legs. Cup your hands to your mouth and breathe into them. Have someone hold your hands (but not rub them, which can cause damage).
Wiggle your fingers or toes.
Move or walk around to improve circulation.
Do "windmills" by twirling your arms around in the air in large circles until circulation returns. If you're worried about drawing attention in public, go into a restroom.
Caution: Do not do `windmills' if you have damaged vessels due to scleroderma.
Run warm (not hot) water over the affected part until normal color returns--remember that moist heat is better than dry heat.
Do not clap your hands together or rub them vigorously, which might damage blood vessels.
Do not overheat your hands. Overheating can shut down blood vessels and prolong the attack.

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Gość: Artur Re: syndrom Reynaud IP: *.sasknet.sk.ca 22.06.04, 19:10

O ile wiem, to nie ma jakiegos super skutecznego leczenia. Czasem probuje sie dawac troche hormonow tarczycy ze zmiennym skutkiem. Profilaktycznie mozna chronic rece przed zimnem i poprawiac krazenie co troche opisane jest ponizej. Moze troche pomoc, ale cudow nie ma.

Keep Warm
Remember that changes in temperature are worse than cold alone. Keeping your head and torso warm enables blood to flow more freely to the extremities. Always dress in loose layers of blended fabrics, including a sweater. Silk long underwear is a good way to protect yourself against chills without overheating. Wear socks (cotton over wool) and mittens to bed. Use an electric blanket and turn it on before you get into bed to warm your sheets. Be sure to wear a warm hat and perhaps earmuffs, since most body heat escapes through the head. If you are going to be outside, try chemical "heaters" in your socks and mittens. Always cover exposed skin, including nose and cheeks, if it is cold and windy. If you are in pain, consider it a warning signal from your body and go inside. Don't get wet, because water cools the skin as it evaporates (the same is true for sweat--wear an underlayer to wick away moisture). Be prepared for changes in your environment by carrying a bag of clothing with you--keep one in your car and workplace. Ask friends and family for help and modify your surroundings to minimize your exposure to cold. Have someone else defrost your refrigerator or buy a frost-free model. Park your car in a protected area and ask someone to start it and crank up the heater 15 minutes before you go out. Drink warm beverages. A hot water bottle is useful, especially on car trips. Consider moving to a warmer climate.
Protect Your Hands from the Cold
Mittens are far more effective at keeping your hands warm than gloves, because they pool the heat from the entire hand. Wear mittens whenever possible, especially when handling cold or frozen food, and carry them with you; also wear "wristlets," which close the gap between the sleeve and the mitten. Damp cold is the most likely to precipitate an attack. Never clean vegetables under cool running water. Use warm water or, better yet, take advantage of the prepared vegetables available in produce departments. Start running your bath or shower ahead of time so that you do not touch cold water. Make sure your garden hose does not leak so that your hands will not become wet when using the hose. Use insulated cup holders and straws for cold beverages. Do not hang wet clothes out or shovel snow.
Avoid Substances that Make You Vulnerable to Chills
Smoking is a risk factor, because nicotine constricts blood vessels (Herrick et al. 1994). If you smoke, quit. Avoid second-hand smoke. Caffeine is also a vasoconstrictor and is found in many hidden sources, such as chocolate, some aspirin preparations, teas, and medications. Birth control pills, most over-the-counter decongestants, cold remedies, and diet pills should also be avoided. Some migraine headache, blood, and heart medications may also cause Raynaud's symptoms.
Take Good Care of Your Skin
Use a cream to keep your hands soft and protect them with gloves when using detergent, using harsh chemicals, or gardening. Keep fingers and toes dry with talcum powder. Be careful not to injure the skin in affected areas, and treat injuries without delay. Even minor cuts and scrapes take longer to heal and may be more susceptible to infection when circulation is impaired. Call your healthcare provider if the affected body part develops an infection or an ulceration.
Find Ways to Reduce Your Stress Level
Since stress is a common precipitating factor, many people benefit from relaxation techniques such as visual imaging, meditation, or massage. Find some time to relax every day, even if it is only for a few minutes. Avoid whatever stressors you can and attempt to minimize stress on your job.
Avoid Precipitating Activities
Episodes can also be brought on by operating vibrating equipment (chainsaw, jackhammer, drill), including the vacuum cleaner (wearing oven mitts can reduce the vibrations), or by repetitive hand motions (typing, playing the piano or guitar, sewing, or chopping and dicing food). Do not carry heavy shopping bags with handles that can restrict blood flow to your fingers.
Improve Circulation
Regular movement and exercise help to keep your skin flexible and maintain better circulation both by improving cardiovascular fitness and by stimulating blood flow. A warm bath for 20 minutes before bed each night may improve your circulation.
Rewarming
When you have an attack, try to stay calm. Gently rewarm your fingers and toes as soon as you can, using the following strategies. The sooner you respond, the easier it will be to restore circulation and the less chance of damage there will be. Just one prolonged instance of Raynaud's syndrome can lead to tissue death, gangrene, and possibly a need for amputation; consider each attack an emergency and respond immediately. Try motion first (because you can do this instantly and perhaps avert the need for further measures), then moist heat. Always be prepared with a variety of rewarming strategies appropriate to the different environments in which you spend your time.
Place your hands under your armpits or between your legs. Cup your hands to your mouth and breathe into them. Have someone hold your hands (but not rub them, which can cause damage).
Wiggle your fingers or toes.
Move or walk around to improve circulation.
Do "windmills" by twirling your arms around in the air in large circles until circulation returns. If you're worried about drawing attention in public, go into a restroom.
Caution: Do not do `windmills' if you have damaged vessels due to scleroderma.
Run warm (not hot) water over the affected part until normal color returns--remember that moist heat is better than dry heat.
Do not clap your hands together or rub them vigorously, which might damage blood vessels.
Do not overheat your hands. Overheating can shut down blood vessels and prolong the attack.
- Gość: Artur ...i nieco bardziej optymistycznie IP: *.sasknet.sk.ca 22.06.04, 19:35
  
  Moze kiedys bedzie dostepne chirurgiczne leczenie twojej choroby. Z moich podstawowych wiadomosci neurologicznych wysnuwam, ze jakis punktowy zabieg thoracotomiczny jest w stanie pewnie ladnie usunac zwlaszcza objawy z twarzy i rak. Ale zostan neurochirurgiem i to wypracuj. Jestem pewny, ze to mozliwe.
  - mary_ann Re: ...i nieco bardziej optymistycznie 22.06.04, 19:40
    
    A mnie przyszło do głowy dośc nietypowe pytanie w związku z s. R. Od niedawna
    uczę się grać na gitarze, nie ukrywam, że opuszki palców lewej reki mam nieco
    wymęczone (nawet naskórek powoli złazi) - czy mając zespół Reynaud muszę zatem
    zrezygnowac z tej przyjemności (grania, nie złażenia skóry:-)))??
    - Gość: Artur Re: ...i nieco bardziej optymistycznie IP: *.sasknet.sk.ca 22.06.04, 19:42
      
      A niby dlaczego zrezygnowac? Moze po prostu nie grac na mrozie.

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