Mayer-Rokitansky-Küster

[zwierciadlom]

Czy ktoś wie coś na ten temat, oprócz info z netu, bo to jest bardzo ubogie,
ale lepsze jak kilka lat temu.

[medaga]

Zespół ten charakteryzuje się brakiem pochwy i szczątkowymi narządami płciowymi
tj, macicą lub kompletnym ich brakiem. Generatywna funkcja jajników jest w
porządku. Istnieje możliwość wytworzenia tzw, sztucznej pochwy z zachyłka
śluzówki pochwy. Warunkiem przeprowadzenia takiej operacji jest dojrzałość
płciowa i posiadanie stałego partnera, gdyż po operacji jest to konieczny
warunek utrzymania wytworzonej pochwy. nie używane organy bowiem
znikają....Niestety w związku z brakiem macicy niemożliwe jest też zajście w ciąże.

[zwierciadlom]

medaga napisała:

> Zespół ten charakteryzuje się brakiem pochwy i szczątkowymi narządami płciowymi
> tj, macicą lub kompletnym ich brakiem. Generatywna funkcja jajników jest w
> porządku. Istnieje możliwość wytworzenia tzw, sztucznej pochwy z zachyłka
> śluzówki pochwy. Warunkiem przeprowadzenia takiej operacji jest dojrzałość
> płciowa i posiadanie stałego partnera, gdyż po operacji jest to konieczny
> warunek utrzymania wytworzonej pochwy. nie używane organy bowiem
> znikają....Niestety w związku z brakiem macicy niemożliwe jest też zajście w ci
> ąże.

Operacji się nie podjęłam tylko wytworzyłam naturalnie pochwę za pomocą chłopa.
Stałego partnera nie mam, ale wspomagam się wibratorem - trzeba dbać o formę, by
nie zarosnąć. Bo kolejne rozciąganie mnie przeraża, a dokładnie ból...

[osmanthus]

> Czy ktoś wie coś na ten temat, oprócz info z netu, bo to jest
bardzo ubogie,
> ale lepsze jak kilka lat temu

Mowisz zapewen o informacji w jezyku polskim.
W jezyku angielskim masz przynajmniej 15 stron linkow.
Ponizej link do strony amerykanskiego stowarzyszenia cierpiacych na
ten zespol (i ich rodzin)


www.mrkh.org/

[zwierciadlom]

> Mowisz zapewen o informacji w jezyku polskim.
> W jezyku angielskim masz przynajmniej 15 stron linkow.
> Ponizej link do strony amerykanskiego stowarzyszenia cierpiacych na
> ten zespol (i ich rodzin)

Hmm, cierpiących na ten zespół i ich rodzin - nie wydaje mi się to taka straszna
rzecz jak rak. Po prostu ja urodziłam się bez pochwy, a ktoś inny rodzi się bez
jądra czy nerki.

[osmanthus]

Mel's Intro
December 2007

Hi there,
I have been going through the old posts, the links, etc, and I know
you have all heard this story-ish a thousand times. I think the
intro posts are some of the best. Also, I don't get to tell it
anywhere else... so thanks for being here/hear!

I grew out of health insurance at 14yrs old when my parents' no
longer had health insurance that would cover me .

Never had a period, of course. I am 27 now, and dx (gosh, was that
just) last week. I knew about my vagina, thanks to my clever 1st
encounter who exclaimed, (and
I quote) "You don't have a pussy!!! There is nowhere to put it!!"

Thanks to him, I checked it out myself. Indeed, nowhere to insert.
Sheesh. I assumed, at the tender young age of 15 (sorry, Mom), that
I was simply not yet developed. Hadn't had a period yet, so
obviously the vagina would grow with the flow (stupid, stupid,
stupid!). Not one to wait for nature, I bought a teeny vibrator and
began... well, you all know. In my next encounter, with a very
small male, I was undetectable.

Still, I'd pinch the vibrator at its innest and see how far in that
was. An inch (INCH!!! Ha!) (ok. maybe only a centimeter. But that is
close to an inch for us Poli Sci majors. Esp the male POL majors!)
after a coupla months. I must be one of "the lucky" ones, eh?

Anyway, I would lay awake many, MANY nights wondering why I was so
different down there. Curios. Terrified. Denial. And I continued
with the vibrators and other accessories to see how deep in I could
get. I imagined hymens to be giant fortresses, which, once
surpassed, would lead to my beautiful long, silky vagina. I knew it
was in there, if I could just get past that wall. Oh,
Rumpelstiltskin, Where for art thou?

Three boyfriends. No wall mounters, but nice guys. A lot of mirror-
to-vagina curiosity. What else might penetrate it? Mild waves of
terror, shielded by Virgo-girls' assumption of practical
explanations. Some day, some doctor would knock down that hymen to
reveal my lovelier than average vagina. Some doctor would put me on
hormones and say, "Go forth, bleed once a month, and create
babies!!! On birth control!!! Behold! The Virgin!"

Doy.

Maybe this is why I studied Women and Gender Sciences in college.
And have such an affection for lesbian, gay, bi, trans, intersex. I
admit, I checked out a few other vaginas in my time (nice.
Loooong!!!).

Anyway, the new gyno, paid for by the new health insurance, says
that I am "fascinating." He said that a few times. "You are
fascinating!" With publications in his eyes. Publish or perish!!!
"I have seen another MRKH patient," he says. In his 19 years of
practice in Michigan. Liar. He never heard of it. I e-mailed him
with MRKH before I went in. I had googled "blind vagina AND absent
uterus." I think I knew more than he did. That is why I waited an
hour and 15 minutes in his office. He was looking up the same
medical journals I had read.

I think I like the idea that there are 1 in a million of us, better
than that there are 1 in 5 thousand of us. It explains a lot. A lot
of doctors. A lot of my feelings. I like to feel special. I am. We
are special.

But, then again, I started with a lot of vulva to work with, I
guess. I am soooooo sorry for some of the dimples I have googled.
Dimple vaginas are very pretty. Very petite. Far prettier than my
butterfly and a half of wings of ugly, stretchy outer labia, and
nothing to back it up. If you are all show, at least in might be a
pretty show. But, alas, photos are not what we are made for (I tell
myself these things.) I guess vagina competitions come with the
territory. (Punny, eh?)

I would love to talk to any of you. I am not religious. I am not PC.
I am alone with my thoughts and my readings of your posts. And I am
in Michigan. Just me and my 1 inch vagina. No kids. (heh.)

Doy.

Thanks for reading this! Read the book, "Woman on the Edge of Time."
I want to live in the alternate reality (the first) that she
encounters. I have a great family. Great job for the moment (hence
the health insurance). I have met a great man. I'd love to meet
some great friends. I hope you are here!!!
>
> Best,
> Mel , age 27, Michigan