IDSA przegrała w Connecticut!

02.05.09, 07:52
Zmieniono prawo gwarantując lekarzom wolność do leczenia boreliozy tak długo,
jak uważają to za stosowne.
Głosowanie w Izbie Reprezentantów było druzgocące. 137 głosów za uchwaleniem
tego prawa i ZERO przeciw.

Jak napisano w komentarzu: IDSA może sobie mówić co chce, ale w naszej
jurysdykcji nie pozbawimy nikogo prawa do leczenia. (news od A.)

PUBLIC HEALTH. Substitute for H. B. No. 6200 (COMM) (File No. 583) AN ACT
CONCERNING THE USE OF LONG-TERM ANTIBIOTICS FOR THE TREATMENT OF LYME DISEASE.

The Speaker ruled the amendment was technical.
The following is House Amendment Schedule "A" (LCO 6317):
In line 4, strike "lyme" and insert "Lyme" in lieu thereof
In line 17, after "statutes" insert ", pursuant to a clinical diagnosis that
is based on knowledge obtained through medical history and physical
examination alone, or in conjunction with testing that provides supportive
data for such clinical diagnosis"
In line 19, after "patient" insert "for a therapeutic purpose that eliminates
such infection or controls a patient's symptoms"
In line 31, after "diagnosis" insert "and treatment"
In line 34, after "action" insert "for other reasons"
In line 35, after "or" insert "from entering into"
In line 36, strike "entered into" and insert "with such physician" in lieu thereof
In line 37, after "to" insert "the"
The bill was discussed by Representatives Hetherington of the 125th, Nicastro
of the 79th, Bartlett of the 2nd, Sayers of the 60th, Scribner of the 107th,
Fawcett of the 133rd, Lyddy of the 106th, Miner of the 66th, Dargan of the
115th, Sawyer of the 55th and Hornish of the 62nd.
The Speaker ordered the vote be taken by roll call at 12: 34 p. m.
The following is the result of the vote:
Total Number Voting 137
Necessary for Passage 69
Those voting Yea 137
Those voting Nay 0
Those absent and not voting 14

AN ACT CONCERNING THE USE OF LONG-TERM ANTIBIOTICS FOR THE TREATMENT OF LYME
DISEASE.
SUMMARY:
Beginning July 1, 2009, this bill allows a licensed physician to prescribe,
administer, or dispense long-term antibiotic therapy to a patient if (1) a
clinical diagnosis is made that the patient has Lyme disease or has symptoms
consistent with such a diagnosis and (2) the physician documents the diagnosis
and treatment in the patient's medical record.
Also beginning July 1, 2009, the bill prohibits (1) the Department of Public
Health from initiating disciplinary action against a physician and (2) the
Connecticut Medical Examining Board from taking disciplinary action solely
because the physician prescribed, administered, or dispensed long-term
antibiotic therapy to a patient clinically diagnosed with Lyme disease. Such
clinical diagnosis must be documented in the patient's record by the physician.
The bill specifies that, subject to the limits on discipline of physicians
treating Lyme disease established by the bill, it does not limit the ability
of the Connecticut Medical.
    • klematis7 Re: IDSA przegrała w Connecticut! 02.05.09, 08:08
      WOW!!!!!
      • ter69 Re: IDSA przegrała w Connecticut! 02.05.09, 09:40
        Czy to może mieć jakiś wpływ na refundowanie długiego leczenia w Polsce?
        • grizac Re: IDSA przegrała w Connecticut! 02.05.09, 09:58
          Ter69, a jak myślisz, skąd się biorą takie a nie inne standardy leczenia
          boreliozy w Polsce?
          Każdy wyłom w dotychczasowych praktykach jest bodźcem do następnych zmian. Ale
          bez złudzeń, to potrwa jeszcze bardzo długo.
    • piwis78 Re: IDSA przegrała w Connecticut! 02.05.09, 12:49
      Bravo teraz pora działania u Nas. piotr
    • fionka21 Re: IDSA przegrała w Connecticut! 02.05.09, 18:07
      To świetna wiadomosć dla nas wszystkich i naszych lekarzy smile

      Ciekawe jak toczą się sprawy wokół nowych standardów leczenia. Mamy już maj...
      • grizac Re: IDSA przegrała w Connecticut! 02.05.09, 18:13
        "Ciekawe jak toczą się sprawy wokół nowych standardów leczenia. Mamy już maj..."

        IDSA raczej nie dotrzyma terminu, ponieważ dostała ogromną ilość uwag od lekarzy
        i organizacji chorych. Materiał od samej tylko ILADS liczy podobno 1600 stron
        krytycznych uwag do rekomendacji z 2006.
        Swoje uwagi wysłały też wspólnie organizacje europejskie ze SCHNB na czele.
        • fionka21 Re: IDSA przegrała w Connecticut! 02.05.09, 18:37
          No to niech pracują, byle nie za długo wink
          • tosho Re: IDSA przegrała w Connecticut! 02.05.09, 20:00
            Stowarzyszenie w Kalifornii:

            www.lymedisease.org/news/lymepolicywonk/114.html
            www.lymedisease.org/news/index.php
            • tajtaja Re: IDSA przegrała w Connecticut! 02.05.09, 20:04
              wielki krok do przodusmile
              • tosho Re: IDSA przegrała w Connecticut! 30.05.09, 01:06
                FOR IMMEDIATE RELEASE

                Contacts: Maggie Shaw Newtown Lyme Disease Task Force Lancaster60@aol.com

                Pat Smith Lyme Disease Association Lymeliter@aol.com

                Newtown, CT, May 29, 2009 − Patient groups across Connecticut and the nation
                were jubilant as the Connecticut Senate passed the Lyme disease doctor
                protection bill today, 36-0, following its unanimous passage in the Connecticut
                House of Representatives on April 30, 2009.

                HB 6200 contains language that will protect CT licensed Lyme treating physicians
                from prosecution by the State of Connecticut Medical Examining Board solely on
                the basis of a clinical diagnosis and /or for treatment of long-term Lyme disease.

                The bill provides the definition for Lyme disease which includes “the presence
                in a patient of signs and symptoms compatible with acute infection with Borrelia
                burgdorferi; or with late stage or persistent or chronic infection with Borrelia
                burgdorferi, or with complications related to such an infection.”

                It also defines clinical diagnosis as determined by a physician “…that is based
                on knowledge obtained through the medical history and physical examination
                alone, or in conjunction with the testing that provides supportive data for such
                clinical diagnosis.”

                In addition, it provides for updating the Lyme disease definition if other
                strains are found to cause Lyme disease.

                The final bill was the result of months of negotiations between Legislative
                Leaders, the Connecticut Department of Public Health and the undersigned patient
                Groups.

                According to Maggie Shaw, Newtown Lyme Disease Task Force, who has been
                spearheading the Connecticut effort, “Patients in Connecticut and their families
                will experience some relief as a result of the passage of this bill and Governor
                Rell’s hoped-for decision to sign it into law.

                Instead of having to drive for hours to other states, Connecticut residents may
                actually be able to receive treatment in the State for their debilitating
                symptoms, since the bill opens the door to a more friendly treatment climate for
                physicians.”

                Pat Smith, president of the national Lyme Disease Association, who has been
                working with legislators in Hartford to secure passage, underscored the
                importance of the bill to patients everywhere:

                “This bill hits at the heart of the Lyme problem, recognizing chronic Lyme
                infection, long-term treatment of Lyme disease, and recognizing and defining
                clinical judgment by physicians.

                Legislators are to be commended for being knowledgeable about the problem,
                focusing on finding a solution acceptable to disparate groups, and taking action
                to make this bill a reality, a win-win for patients, doctors and the State itself.”

                • tosho Re: IDSA przegrała w Connecticut! 30.05.09, 01:06
                  The Groups extend their appreciation to all the Senators, especially the
                  sponsors. In particular, we thank Senator Jonathan Harris (CT-5), Co-Chair of
                  the Joint Public Health Committee, and Senator Martin Looney (CT-11), Senate
                  Majority Leader, who took time from their busy schedules prior to passage to
                  meet with the Groups on the importance of the bill.

                  In the House, thanks go to Representatives Jason Bartlett, Kim Fawcett, Public
                  Health Committee Co-Chair, Betsy Ritter, and Representatives Chris Lyddy, Peggy
                  Reeves and all of the legislators who supported this bill.

                  Passage in both houses would not have occurred without the support of patients,
                  families and members of the Lyme community who wrote letters, made phone calls
                  and testified in support of the bill and without the critical input and support
                  of the Connecticut Medical Society.

                  The International Lyme and Associated Diseases Society, which consists of Lyme
                  treating physicians, also supported the bill.

                  The Groups have confidence that Connecticut Governor M. Jodi Rell will fulfill
                  her commitment to Connecticutresidents and quickly sign this important piece of
                  legislation into law, which would make Connecticut the second state after RI to
                  pass a specific Lyme disease protection bill.

                  Representatives of the Groups met with the Governor’s office earlier this month.

                  For wording on the bill, please go to www.cga.ct.gov/ HB6200 (File # 903)

                  Lyme Disease Association, Inc.
                  Newtown Lyme Disease Task Force
                  Ridgefield Lyme Disease Task Force
                  Time For Lyme, Inc.
                  Eastern Connecticut Chapter, Lyme Disease Association
                  • tosho Re: IDSA przegrała w Connecticut! 30.05.09, 01:08
                    Powyżej więcej dobrych wieści. smile

                    • dobbiaco Re: IDSA przegrała w Connecticut! 30.05.09, 11:17
                      Chyba na początku roku czytałam,że polskie Towarzystwo Bakteriologów
                      i zakażników(?mogłam pokręcić nazwę..)-chodzi o polskich zakażników-
                      czy też..o Min.Zdrowia-ma do maja czas na zajęcie stanowiska,czy
                      model leczenia boreliozy nie powinien uleć
                      zmianie..Byłoby..dobrze;choć.. poznawszy siłę .."oporu
                      materii"..jakoś w to nie wierzę..tak szybko i radykalnie...
    • trinity28 Re: IDSA przegrała w Connecticut! 30.05.09, 12:00
      Boże, aż mi się oczy zaszkliły jak to przeczytałam !

      Teraz tylko przełamać opór umysłów u polskich lekarzy i może będziemy w końcu
      pełnoprawnymi pacjentami a nie hipochondrykami nadającymi się tylko do psychiatry!
      • tosho Re: IDSA przegrała w Connecticut! 30.05.09, 15:22
        a IDSA dalej brnie i w ostatnim czasie stworzyła darmowy kurs internetowy dla
        lekarzy o Boreliozie. Obrzydliwe indifferent

        lymecourse.idsociety.org/
        • tosho Re: IDSA przegrała w Connecticut! 08.06.09, 05:07
          Connecticut Seal

          Substitute House Bill No. 6200

          Public Act No. 09-128

          AN ACT CONCERNING THE USE OF LONG-TERM ANTIBIOTICS FOR THE TREATMENT OF LYME DISEASE.

          Be it enacted by the Senate and House of Representatives in General Assembly convened:

          Section 1. (NEW) (Effective July 1, 2009) (a) As used in this section, (1) "long-term antibiotic therapy" means the administration of oral, intramuscular or intravenous antibiotics, singly or in combination, for periods of time in excess of four weeks; and (2) "Lyme disease" means the clinical diagnosis by a physician, licensed in accordance with chapter 370 of the general statutes, of the presence in a patient of signs or symptoms compatible with acute infection with borrelia burgdorferi; or with late stage or persistent or chronic infection with borrelia burgdorferi, or with complications related to such an infection; or such other strains of borrelia that, on and after July 1, 2009, are recognized by the National Centers for Disease Control and Prevention as a cause of Lyme disease. Lyme disease includes an infection that meets the surveillance criteria set forth by the National Centers for Disease Control and Prevention, and other acute and chronic manifestations of such an infection as determined by a physician, licensed in accordance with the provisions of chapter 370 of the general statutes, pursuant to a clinical diagnosis that is based on knowledge obtained through medical history and physical examination alone, or in conjunction with testing that provides supportive data for such clinical diagnosis.

          (b) On and after July 1, 2009, a licensed physician may prescribe, administer or dispense long-term antibiotic therapy to a patient for a therapeutic purpose that eliminates such infection or controls a patient's symptoms upon making a clinical diagnosis that such patient has Lyme disease or displays symptoms consistent with a clinical diagnosis of Lyme disease, provided such clinical diagnosis and treatment are documented in the patient's medical record by such licensed physician. Notwithstanding the provisions of sections 20-8a and 20-13e of the general statutes, on and after said date, the Department of Public Health shall not initiate a disciplinary action against a licensed physician and such physician shall not be subject to disciplinary action by the Connecticut Medical Examining Board solely for prescribing, administering or dispensing long-term antibiotic therapy to a patient clinically diagnosed with Lyme disease, provided such clinical diagnosis and treatment has been documented in the patient's medical record by such licensed physician.

          (c) Nothing in this section shall prevent the Connecticut Medical Examining Board from taking disciplinary action for other reasons against a licensed physician, pursuant to section 19a-17 of the general statutes, or from entering into a consent order with such physician pursuant to subsection (c) of section 4-177 of the general statutes. Subject to the limitation set forth in subsection (b) of this section, for purposes of this section, the Connecticut Medical Examining Board may take disciplinary action against a licensed physician if there is any violation of the provisions of section 20-13c of the general statutes.
          • tosho Re: IDSA przegrała w Connecticut! 08.06.09, 05:29
            Panel dotyczący wskazówek IDSA odbędzie się 30 lipca.

            www.lymedisease.org/news/lymepolicywonk/130.html
            Prawdopodobnie będzie można oglądać na żywo całe spotkanie przez internet.
            • osuchmar Re: IDSA przegrała w Connecticut! 08.06.09, 10:22
              Nie wiem, czy warto sie tak podniecac w kontekscie Polski. W Stanach jest kasa
              na badania i leczenie. Jesli ktos ma ubezpieczenie, to sie leczy i juz.

              W Polsce ordynator zakaznikow ze Slaska powiedzial, ze ma na miesiac limit chyba
              5 WB, wiec dla byle pierdoly nie bedzie kogos badal, bo NFZ za to nie zaplaci. I
              o czym tu dyskutowac.

              Ministerstwu Zdrowia jest chyba na reke chowanie problemu do szuflady, bo to
              jest tansze. A jak komus sie nie podoba lub cierpi, to niech sobie sam zrobi
              wszystkie badania i testy za 100% kosztow i przyjdzie do nich z gotowym
              wynikiem. Wtedy ewentualnie podejma sie "standardowego" leczenia. Tak propozycje
              uslayszalam od wspomnianego ordynatora. Plus oczywiscie wskazowke, ze powinnam
              isc do psychiatry.

              Polska to piekny kraj, a nazywa sie ZuluGula...
              • ewa475 Re: IDSA przegrała w Connecticut! 08.06.09, 10:56
                Nie ma pieniędzy na WB,są za to na wielokrotne rezonansy i punkcje,aby tylko daj
                Boże znaleźć coś co wskaże na SM i będzie spokój!
                To również renty,respiratory w domu pacjenta,cotygodniowe wizyty
                lekarza,pielęgniarki i rehabilitanta,to wózki,leki znacznie droższe niż
                antybiotyki,itd.
                Pochrzanione to jest i tyle!
                • tosho Re: IDSA przegrała w Connecticut! 23.06.09, 09:38
                  www.acorn-online.com/joomla15/index.php?option=com_content&view=article&id=30799:governor-signs-bill-shielding-doctors-in-treatment-of-lyme-disease&catid=46:rfd-local&Itemid=778
                  Governor signs bill, shielding doctors in treatment of Lyme disease
                  Written by Jack Sanders
                  Sunday, June 21, 2009

                  Governor M. Jodi Rell said Sunday she has signed a bill allowing doctors to
                  prescribe long-term antibiotics in the treatment of persistent Lyme disease –
                  outside of standard guidelines – without fear of sanctions from state health
                  regulators if the patient’s clinical diagnosis of the tick-borne disease and
                  treatment have been documented by a licensed physician.

                  “Doctors in Connecticut – the absolute epicenter of Lyme disease – can continue
                  to do what is best for their patients suffering from this complex illness. I
                  think most people know someone who has been infected,” Governor Rell said. “The
                  bill also recognizes that Lyme disease patients must have the freedom to choose
                  which remedy or regimen best meets their needs.”

                  The disease gets its name from the shoreline town of Lyme, Connecticut, where in
                  1975 a cluster of children and adults there experienced uncommon arthritic
                  symptoms Caused by the bacterium Borrelia burgdorferi, Lyme disease is spread
                  through the bite of infected deer ticks. Symptoms include a rash, fatigue,
                  headache, fever, and achy muscles and joints. Later symptoms may include
                  arthritis, neurological problems, and heart problems.

                  House Bill 6200, which gained broad bipartisan support in the Legislature, was
                  prompted by an ongoing debate in the medical community. Some health
                  organizations have questioned the existence of chronic Lyme disease and the
                  Infectious Diseases Society of America (IDSA) has cautioned against the
                  long-term use of antibiotics. Some physicians were hesitant to treat patients
                  outside the IDSA guidelines because of potential reprimands from medical boards
                  and insurance companies.

                  “Doctors will have the right to use treatment guidelines based on their clinical
                  experience and best medical judgment,” Governor Rell said. “This bill does not,
                  however, shield any physician who provides substandard care.”
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